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Trusted Resources: Evidence & Education
Scientific literature and patient education texts
Living With Sickle Cell Disease
source: National Heart, Lung and Blood Institute
year: 2020
summary/abstract:If you or your child has sickle cell disease (SCD), you should learn as much as you can about the disease. Your health care providers are there to help you, and you should feel comfortable asking questions.
Pursue a Healthy Lifestyle
Like all people, you or your child should strive to maintain a healthy lifestyle that includes:
A nourishing diet
Enough sleep
Regular physical activity
People with SCD often tire easily, so be careful to pace yourself and to avoid very strenuous activities.
Don’t smoke and try to avoid second-hand smoke. If you drink alcohol, do so in moderation and drink extra water to avoid dehydration.
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.