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Lessons Learned From a Randomized Controlled Trial of a Family-Based Intervention to Promote School Functioning for School-Age Children With Sickle Cell Disease

key information

source: Journal of Pediatric Psychology

year: 2015

authors: Daniel LC, Li Y, Smith K, Tarazi R, Robinson MR, Patterson CA, Smith-Whitley K, Stuart M, Barakat LP

summary/abstract:

OBJECTIVE:
Tested a family-based group problem-solving intervention, “Families Taking Control,” (FTC) to improve school functioning and health-related quality of life (HRQL) for children with sickle cell disease.

METHOD:
Children and caregivers completed questionnaires assessing HRQL and school functioning and children completed performance-based measures of IQ and achievement at baseline and 6 months later. Families were randomized to the intervention (FTC, n = 42) or delayed intervention control (DIC, n = 41) group. FTC involved a full-day workshop followed by 3 booster calls.

RESULTS:
There were no differences between FTC completers (n = 24) and noncompleters (n = 18). FTC group (n = 24) and DIC group (n = 38) did not differ significantly on primary outcomes at follow-up: number of formal academic and disease-related accommodations, individualized education plan/504 service plan, school absences, school HRQL, or academic skills.

CONCLUSIONS:
Although families found FTC to be acceptable, there were no intervention effects. Challenges of the trial and implications for future research are discussed.

organization: The Children's Hospital of Philadelphia; Perelman School of Medicine of the University of Pennsylvania; University of South Carolina; Drexel University College of Medicine; St. Christopher's Hospital for Children; Thomas Jefferson University

DOI: 10.1093/jpepsy/jsv063

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