Trusted Resources: Evidence & Education
Scientific literature and patient education texts
Ask Dr. Kevin: Shedding Light on the “Invisible Symptoms” of Sickle Cell Disease
source: Pfizer Rare Disease in collaboration with the National Newspaper Publishers Association
year: 2018
authors: Dr. Kevin Williams
summary/abstract:September was Sickle Cell Awareness Month in the United States. Every year at this time, I like to take a moment to reflect on all the incredible work being done by and for the sickle cell disease (SCD) community, while recognizing that we have a lot left to do.
Great strides are being made in raising overall awareness about SCD, but I believe there remains an urgent need to increase understanding that SCD is not just a physical disease. SCD can affect all aspects of a patient’s life, including emotional well-being.
What I’ve heard time and time again from people living with SCD is that they often feel isolated in their journey. Kyle, a patient living with SCD, recently summed it up nicely when he said, “Sometimes it is hard to just get out of bed. What it means to live in pain is not something that many can truly understand.”
read more
Related Content
-
Sickle Cell Disease: Why Is It Hard to Talk About Our Pain?https://www.youtube.com/watch?v=63pgiclv...
-
Vivien Sheehan, MD, PhDDr. Vivien Sheehan is a pediatric and ad...
-
The effects of pain-related anxiety on hypnosis treatment responses in adults with and without sickle cell diseasePain is the most common symptom in sickl...
-
My Red Cell Exchangehttps://www.youtube.com/watch?v=HTcLwgLE...
-
Augusta University Sickle Cell CenterLocated in Augusta, Georgia, Augusta Uni...
-
Capitol Hill Briefing Held to Encourage Sickle Cell Research and TreatmentEarlier today, a briefing was hosted on ...
-
Mortality Among Women with Sickle Cell Disease Admitted for Delivery, California 2004-2014Maternal mortality results among women w...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.