Sickle Cell Disease news and research updates
Research readouts, treatment and access decisions, and community updates for people living with sickle cell disease and the people who care for them — each one dated, with a link to the original source where there is one.
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The State of Sickle Cell Care in MA Symposium
Sickle Cell Symposium: State of Sickle Cell Care in Massachusetts – The Way Forward The Massachusetts Sickle Cell Association, in partnership with the Town of Randolph, Spring of…
US senators seek 5 more years of federal funding for stem cell program
A bipartisan team of U.S. senators has introduced legislation to renew funding for a national initiative that connects people with blood disorders such as sickle cell disease…
- Clinical Trials and Researchclinicaltrials.ucbraid.org
A Research Study Looking at Long-term Treatment With Etavopivat in People With Sickle Cell Disease or Thalassaemia
Etavopivat is a new medicine under development for treating blood disorders like sickle cell disease and thalassaemia. Sickle cell disease and thalassaemia are inherited blood…
The ASH Research Collaborative Sickle Cell Disease Research Network: past, present, and future
Historically, sickle cell disease (SCD) has been overshadowed by progress in other hematologic disorders, but recent advances are reshaping its clinical and research landscape…
Sickle cell disease
Sickle cell disease is a genetic red blood cell disorder, affecting millions of people globally. This Seminar provides a comprehensive update on the disease, emphasising its…
- Happeningshematologyadvisor.com
Novel Patient-Reported eDiary Validated for Assessing Sickle Cell Pain Crises
A novel patient-reported outcome tool designed to capture home-managed sickle cell pain crises (SCPC) demonstrated strong content validity in adolescents and adults with sickle…
- Fundraising Eventsfindarace.com
Sickle Cell 5K Road Race/Walk
Sickle Cell 5K Road Race/Walk Date Sat 5th September 2026 Time 9:00AM EDT Location Atlanta, Georgia Price Free - $55.00 Races 4 races Distances 5km
- Fundraising Eventschopsicklecellwalk.org
Fighting Sickle Cell Disease Is in Our Blood!
Cure Sickle Cell Walk & Family Fun Day in Action In this video recap of last year’s event, patient families and CHOP doctors share why they participate in the Cure Sickle Cell…
Adults with SCD face high risk of stroke in their 30s and 40s, study finds
Adults with sickle cell disease (SCD) face a substantial risk of stroke, most often in their 30s and 40s, with lasting physical disability and cognitive impairment, a new study…
- Businessdelveinsight.com
Sickle Cell Disease Market Estimated at USD 650 Million in 2024, Set for Steady Growth Through 2034
Across the 6MM countries, the Sickle Cell Disease market size was estimated at around USD 650 million in 2024 and is expected to experience steady growth over the forecast period…
CONGRESS PASSES FISCAL YEAR 2026 FUNDING PACKAGE WITH BIG WINS FOR THE SICKLE CELL DISEASE COMMUNITY
In early February, Congress finally advanced, and the President signed into law, a funding package for federal programs for fiscal year (FY) 2026, which runs through September 30…
Sickle Cell disease treatment hits medical breakthrough in Detroit
The Brief A new, commercially available treatment that could potentially cure Sickle Cell Disease has made a breakthrough. Chantez Sanford was diagnosed with sickle cell disease…