Novel Patient-Reported eDiary Validated for Assessing Sickle Cell Pain Crises

A novel patient-reported outcome tool designed to capture home-managed sickle cell pain crises (SCPC) demonstrated strong content validity in adolescents and adults with sickle cell disease (SCD), according to research published in Advances in Therapy. The newly developed eDiary captures the frequency, severity, and functional impact of pain crises, addressing a longstanding gap in standardized tools for assessing patient experiences outside clinical settings.