Sickle Cell Disease news and research updates
Research readouts, treatment and access decisions, and community updates for people living with sickle cell disease and the people who care for them — each one dated, with a link to the original source where there is one.
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Ischemic Stroke in Children With Sickle Cell Disease: A Report of Three Cases and a Review of the Literature
Ischemic Stroke in Children With Sickle Cell Disease discusses three cases and includes a review of literature related to sickle cell disease, an inherited hemoglobin disorder…
REDRESS Open Evening: Sharing Stories, Challenging Myths and Shaping the Future of Sickle Cell Care
This blog by Daryl Hagan highlights an open evening focused on sharing knowledge and experiences related to sickle cell research. Read the original report from King's College…
HHS Expands Sickle Cell Care Nationwide with Seven New Regional Hubs
HHS announced seven awards as part of its Sickle Cell Disease Regional Care Excellence (SoRCE) Program, aiming to expand sickle cell care nationwide. Read the original report from…
Wally Smith, M.D., Calls for More Resources for Treating Patients with Sickle Cell Disease
Wally Smith, M.D., emphasizes the need for increased awareness, education, and research funding to address the stalled progress in treating sickle cell disease. Read the original…
Bordetella hinzii Antenatal Sepsis in a Pregnant Woman With Sickle Cell Disease and Intrauterine Fetal Demise: A rare and first case report from India
Abstract Bordetella hinzii is a rare, opportunistic Gram-negative bacterium traditionally associated with poultry but increasingly identified as a human pathogen in…
Sickle cell trait could throw off diabetes test, study finds
People with sickle cell trait — those who have one sickle cell gene but do not experience sickle cell disease — may need specific laboratory monitoring for blood sugar in order to…
Not so benign: Life-threatening hematuria from renal papillary necrosis in sickle cell trait
Highlights Sickle cell trait can cause severe, transfusion-dependent hematuria -- not always benign; requires thorough evaluation. Consider renal papillary necrosis for recurrent…
Mandibular Osteomyelitis and Acute Soft Head Syndrome in an Adolescent With Sickle Cell Disease
Abstract Sickle cell disease (SCD) is a type of inherited disorder of hemoglobin characterized by recurring vaso-occlusive pain crises that affect many organ systems. Although it…
Children’s Hospital Colorado Helps Shape National Standards for Neurodevelopmental and Neurocognitive Care in Sickle Cell Disease
Recommendations outline earlier screening and lifelong monitoring for development and cognition AURORA, Colo. , July 28, 2026 /PRNewswire/ -- Children’s Hospital Colorado…
Agios halts development of oral sickle cell drug following trial
Agios Pharmaceuticals is discontinuing development of its oral therapy candidate, tebapivat, for people with sickle cell disease (SCD). The decision follows results from a small…
Texas woman goes to a hospital for help with pain related to Sickle Cell Anemia, only to be told ‘seems like you’re trying to get high’
Many patients face significant barriers when seeking care for chronic conditions. This was recently highlighted by Dr Joel Bervell, who showcased a video involving a Texas woman…
Children's Colorado helps develop national standards for sickle cell care
Children's Hospital Colorado (Children's Colorado) supported the National Alliance of Sickle Cell Centers (NASCC) in developing new national standards to improve how clinicians…