Sickle Cell Disease news and research updates
Research readouts, treatment and access decisions, and community updates for people living with sickle cell disease and the people who care for them — each one dated, with a link to the original source where there is one.
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India's Sickle Cell Anemia Burden: Why Certain Regions And Communities Are More Affected
Sickle Cell Disease (SCD), commonly known as sickle cell anemia , is one of the most common inherited blood disorders in India. It occurs when an individual inherits an abnormal…
Aflac general counsel: Georgia lawmakers took a crucial step forward on sickle cell disease – but there’s more work to be done
Audrey Boone Tillman is Senior Executive Vice President and General Counsel of Aflac Incorporated, where she directs the Fortune 500 company’s Legal division globally and oversees…
Normalise conversations to rid stigma against sickle cell disease: Doctors
Bengaluru: For nearly a decade, a girl with sickle cell disease was taken to hospitals only during painful emergencies while her family avoided regular treatment for the inherited…
Sickle cell disease enters the era of gene therapy, but cures don't come cheaply
New gene therapies offer potential cures for sickle cell disease, but multimillion-dollar costs raise major questions about access and equity. Sickle cell disease has long been…
Addressing access and equity in sickle cell disease care
Sickle cell disease (SCD) is a genetic blood disorder that causes red blood cells to form in a crescent moon shape. These sickled blood cells can stick together and prevent oxygen…
Patient reflects on decades of progress in sickle cell treatment
Audrey Smith, 78, was diagnosed with sickle cell disease at a young age. She has received care at Johns Hopkins for more than 20 years. "I'm grateful for the concern and the love…
New $5.1 Million Grant Will Help Doctors Better Understand and Treat Sickle Cell Pain
SSRI affiliate has secured major federal funding to study why sickle cell disease patients experience pain so differently, and what that means for their care. The Genomics, Race…
As World Sickle Cell Day approaches, Red Cross encourages blood donation to support patients living with the disease
When Brandis Clayton Virgial and Halema Townsend first met through Zeta Phi Beta Sorority in 2023, they quickly bonded over their shared commitment to service. During a private…
FDA reviewing Casgevy for children with sickle cell as young as 5
The U.S. Food and Drug Administration is reviewing an application from Vertex Pharmaceuticals seeking approval of Casgevy (exagamglogene autotemcel) for children with sickle cell…
Governor Spanberger Signs Queen Candis Act Into Law, First-in-the-Nation Package to Transform Sickle Cell Care
New Laws Will Expand Education, Training, Access, and Coordinated Care for Virginians with Sickle Cell NEWPORT NEWS, VA — Governor Abigail Spanberger today signed a…
The hidden struggle of Sickle Cell disease and the hope in new treatments
Sickle cell disease (SCD) is a group of inherited blood disorders that cause red blood cells to become hard, sticky, and crescent-shaped. Instead of flowing smoothly through blood…
Stem cell transplantation found to be more cost-effective than gene therapy for sickle cell disease
Stem cell transplantation is the most cost-effective option for long-term care of sickle cell disease in adults when compared with gene therapy and standard of care treatment…