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It’s Black History Month, when the nation commemorates the many achievements and contributions of African Americans.
It’s also a time to reflect on certain health issues with significant mortality and morbidity that disproportionately afflict African Americans.
Sickle cell disease (SCD) is one such health problem. SCD is a group of congenital red blood cell disorders, named sickle cell for the crescent shape of red blood cells. SCD alters the structure of hemoglobin, the molecule in red blood cells that delivers oxygen to organs and tissue throughout the body. The most common SCD disorder type is sickle cell anemia.
SCD affects millions of people worldwide. In the U.S., approximately 100,000 individuals are living with the congenital disease. The disease predominantly impacts people of sub-Saharan African descent.
SCD causes significant morbidity, including severe pain, anemia, organ damage, and infections. The disease also leads to premature mortality.
education & researchDevelopment and Feasibility Testing of the Comfort Ability Program for Sickle Cell Pain: A Patient-Informed, Video-B...Objective: Even with optimized medical...
news & eventsMARAC Statement: Crizanlizumab (Adakveo)July 7, 2023 - SCDAA’s Medical and Res...
news & eventsGlobal Blood Therapeutics (GBT) announces upcoming data presentations supporting Voxelotor SCD programGlobal Blood Therapeutics, Inc. (GBT) ...
education & researchOrphan Drugs for Sickle Vaso-occlusion: Dawn of a New Era of Targeted TreatmentWhile an orphan disease in the USA, sick...
news & eventsGene-Editing Treatment Shows Promise for Sickle Cell DiseaseScientists are seeing promising early re...
news & eventsASH launches sickle cell disease clinical trials network to accelerate therapy developmentASH launched a clinical trials network d...
news & eventsSickle Cell Patient Receives CRISPR Gene TherapyMany human diseases can be traced back t...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.