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July 27, 2020 – Sickle cell disease remains a high-risk condition for severe COVID-19 infection. Registry data show that individuals with sickle cell disease are more vulnerable to death with COVID-19 at all ages, including children.
We recommend that families with children with sickle cell disease follow state and local guidelines regarding the determination of in-person versus distance learning as long as processes are in place to ensure the least possible risk of your child getting infected with COVID-19. If safety measures are not implemented or cannot be enforced, we recommend that schools provide equitable access to high quality education through home-based distance learning. The checklist below should be used to determine if your child’s school has the recommended safety measures in place.
videos & visualsSCD/ Thalassaemia and COVID-19: Possible Risks and a Proposal for a Patient Pathway During the Pandemic – Webi...https://www.youtube.com/watch?v=ENKX7Kf6...
news & eventsWhy I Will Be Getting the COVID-19 VaccineOn Nov. 9, Pfizer and BioNTech announced...
news & eventsCOVID-19 Vaccine Communication Toolkit for Community-Based OrganizationsThe toolkit is designed to help CBOs edu...
education & researchCOVID-19 Community Survey Report – NORD Rare InsightsThe novel coronavirus, and the disease t...
news & eventsSister of Illinois’ first coronavirus victim also dies from virus. Quarantine prevents family from mourning togeth...At the urging of family members, Wanda B...
videos & visualsYou Should Get a COVID-19 Vaccine – Swahilihttps://www.youtube.com/watch?v=Cvl_R8sJ...
videos & visualsSCDAA’s Response to the COVID-19 Pandemichttps://www.youtube.com/watch?v=ikKWJoFb...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.