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Trusted Resources: News & Events
Latest announcements and gatherings
Rare Disease Day – Home
Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.
The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases.
Rare Disease Day events are down to hundreds of patient organisations all over the world who work on a local and national level to raise awareness for the rare disease community in their countries.
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news & eventsIndiana Sickle Cell Conference 2020 – VirtualThis one-day conference will provide hel...
news & events
news & eventsCamp New Hope 2022Camp New Hope is a seven-day; six-night ...
news & eventsFSCDR’S Inaugural Behavioral Science Symposium Sickle Cell Disease: Matters of the HeartFSCDR’s Inaugural Behavioral Science S...
news & eventsEmerging opportunities in sickle cell disease cure, treatment and pain managementIn support of City of Hope’s recent CI...
news & eventsIncreasing Appointment Attendance: A Vital Opportunity to Improve Health Outcomes for Those Living with Sickle Cell ...Sickle cell disease (SCD) affects approx...
news & eventsA New Era in Sickle Cell Disease Treatment – 2nd Biennial pediatric-adults regional sickle cell disease confer...This biennial educational conference foc...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.