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Trusted Resources: News & Events
Latest announcements and gatherings
Rare Disease Legislative Advocates (RDLA) staff organizes virtual meetings for rare disease advocates with their Members of Congress and/or the Member’s staff. The RDLA team also helps to prepare advocates for their meetings, providing legislative resource materials and hosting pre-meeting training webinars.
No prior advocacy experience is necessary.
Registration for this event and all RDLA events are free for rare disease advocates.
February 22, 2021 – March 5, 2021
Virtual meetings with your Members of Congress and Virtual Advocacy Events
news & eventsSCDF: BabySteps Parent Education MeetingBabySteps is a FREE monthly program for ...
videos & visualsSickle Cell Warriors: Session 2https://vimeo.com/286941813...
news & eventsJordin Sparks Wants You to Know Your Sickle Cell StatusThe phrase “know your status” is syn...
education & researchData & Statistics on Sickle Cell DiseaseSickle cell disease (SCD) affects millio...
videos & visualsCoronavirus Questions: Getting Answers From the Expertshttps://www.youtube.com/watch?v=iFavuPKV...
news & events28-Year-old Sickle Cell Survivor Becomes Medical DoctorA 28-year-old sickle cell anaemia surviv...
news & eventsThe 12th Annual International Conference on StigmaThe 12th Annual International Conference...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.