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Trusted Resources: News & Events
Latest announcements and gatherings
Rare Across America 2021
Rare Disease Legislative Advocates (RDLA) staff organizes virtual meetings for rare disease advocates with their Members of Congress and/or the Member’s staff. The RDLA team also helps to prepare advocates for their meetings, providing legislative resource materials and hosting pre-meeting training webinars.
No prior advocacy experience is necessary.
Registration for this event and all RDLA events are free for rare disease advocates.
February 22, 2021 – March 5, 2021
Virtual meetings with your Members of Congress and Virtual Advocacy Events
news & eventsNFL Broadcaster Solomon Wilcots and Emmaus Life Sciences Kick Off “Sideline Sickle Cell” Campaign during...Emmy Award-winning NFL broadcaster Solom...
news & eventsCayenne Wellness Annual Sickle Cell Disease Educational SeminarCayenne Wellness Center’s Annual Sickl...
news & eventsRare Disease Day Symposium at the Quinnipiac Frank H. Netter MD School of MedicineSince 2015, the Frank H. Netter MD Schoo...
people & placesConquering The Curve, Inc.Conquering The Curve is an initiative th...
news & eventsCharlotte 13-Year-Old With Sickle Cell Plays Lead Role in Broadway’s ‘Lion King’"The Lion King" opens Wednesday night at...
news & eventsManagement of Sickle Cell Disease SymposiumThe Management of Sickle Cell Symposium ...
news & eventsInitiative helping sickle cell patientsIt doesn't happen daily, but 11-year-o...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.