DISCLAIMER
The information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.compose your message
message sent
email sent successfully
Trusted Resources: News & Events
Latest announcements and gatherings
Rare Across America 2021
Rare Disease Legislative Advocates (RDLA) staff organizes virtual meetings for rare disease advocates with their Members of Congress and/or the Member’s staff. The RDLA team also helps to prepare advocates for their meetings, providing legislative resource materials and hosting pre-meeting training webinars.
No prior advocacy experience is necessary.
Registration for this event and all RDLA events are free for rare disease advocates.
When:
February 22, 2021 – March 5, 2021
Where:
Virtual meetings with your Members of Congress and Virtual Advocacy Events
+myBinderRelated Content
-
news & eventsCommunity Health Worker Training – SCDAAOur training program covers the core com...
-
news & eventsCommunity Gathering Guide: Hosting a Shine the Light EventThis year, Sickle Cell Disease community...
-
news & eventsInitiative helping sickle cell patientsIt doesn't happen daily, but 11-year-o...
-
Community CenterQ & A With Andre Marcel HarrisQ: When were you diagnosed with sickle c...
-
education & researchStrategies to Avoid the FluIt’s cold and flu season and the usual...
-
education & research7 Ways to Step Up Your Sleep GameWe can’t get out of bed in the morning...
-
news & eventsJordin Sparks Wants You to Know Your Sickle Cell StatusThe phrase “know your status” is syn...
send a message
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.