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The New Jersey Legislature is considering creating a confidential registry of newborns diagnosed with sickle cell trait. Assemblyman Herb Conaway said many people with sickle cell disease are not getting standard treatments for that condition.
Conaway said individuals with sickle cell trait could pass the gene onto their children and put them at risk for sickle cell disease that causes severe anemia, chronic pain, and other health complications. He said the registry would help with family planning decisions.
Assemblyman Benjie Wimberly said increasing the number of people who know whether they are carriers of that trait can potentially decrease the prevalence of sickle cell disease.
education & research‘Talk to Me. There’s Two of Us’: Fathers and Sickle Cell ScreeningStudying kinship has involved doing fami...
education & researchMetabolic syndrome among adults living with sickle cell diseaseMetabolic syndrome (MetS) is a key risk ...
news & eventsIASCNAPA Sickle Cell Disease Conference: Treating the Whole PersonDate: April 14-15, 2021 Place: Online/V...
news & eventsASH offers early look at updated SCD guidelines: Experts formulated >50 recommendations on sickle cell diseaseThe American Society of Hemato...
news & eventsHealthcare advocates aim to better inform community on sickle cell realitiesOne in 2,400 are born with sickle cell d...
videos & visualsSCDAA Gene Therapy Town Hall – Webinarhttps://www.youtube.com/watch?v=J77Gq9yI...
Community CenterHardships, and New Hope, for Sickle Cell PatientsSickle cell disease affects about 100,00...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.