Trusted Resources: Evidence & Education
Scientific literature and patient education texts
Sickle Cell Disease Health Disparities
source: CDC Foundation
year: N/A
summary/abstract:Sickle cell disease (SCD) is the world’s most common genetic disease, affecting approximately 100,000 people in the United States. As a group, people with SCD experience worse health outcomes compared to other diseases and have access to fewer health resources. This lack of equality is termed a health disparity.
Through a partnership with the Centers for Disease Control and Prevention’s Division of Blood Disorders, Tracking California and the Georgia Health Policy Center, the CDC Foundation is implementing the Sickle Cell Data Collection (SCDC) program to collect health information about people with SCD to study long-term trends in diagnosis, treatment and healthcare access. The SCDC program aims to use study findings to inform policy and health care changes that decrease health disparities for people with SCD.
The project is receiving funding support from Pfizer Inc., Bioverativ and Global Blood Therapeutics and is active in California and Georgia. Additional support is needed to expand the program to all of the United States to improve the disparate state of SCD.
read moreRelated Content
-
Sophie Lanzkron, MD, MHSDr. Sophie Lanzkron is an associate prof...
-
The Sickle Cell Infusion Center at Johns HopkinsThe Sickle Cell Center for Adults is ded...
-
University of Illinois at Chicago awarded $4.6 million NIH grant for chronic pain researchThe University of Illinois at Chicago ha...
-
Merlin Crossley, DPhilMerlin Crossley is Deputy Vice-Chancello...
-
Vitamin D Supplements May Reduce Pain-related Emergency Room Visits in Children With SCDTaking vitamin D supplements may lower t...
-
Celebrating Nurses’ WeekNurses’ week takes place between Thurs...
-
St. Louis Children’s HospitalThe St. Louis Children's Hospital Sickle...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.