DISCLAIMERThe information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.
compose your message
email sent successfully
Trusted Resources: Community Center
Online groups, photo galleries and blogs
Sickle Cell Survivor’s Twin Mission: Advocacy and Research
Marie was born in Kenya to a single mother, Josephine Ojiambo. She eventually had two younger siblings, but she bonded most closely with her older brother Peter. They were just one year apart. “We sheltered each other… and went through life teaching each other.” Their experiences were very similar. They went to the same schools. They had the same friends. And they both were born with sickle cell anemia, caused by a mutation in a single gene that turns red blood cells into rigid crescent or sickle shapes, instead of soft discs.
Marie’s mother founded the Peter Ojiambo Foundation, of which Marie and her sisters are board members. Marie had done extensive work in the nonprofit space before this, focusing on advocacy and education for sickle cell disease with the Sickle Strong Initiative. Since beginning her advocacy work, the number of treatment options for sickle cell have significantly increased.
people & placesSickle Cell Foundation of the River RegionThe Sickle Cell Foundation of the River ...
people & placesAdvancing Sickle Cell Advocacy ProjectAdvancing Sickle Cell Advocacy Project (...
people & placesCynthia Gipson, MACynthia Gipson is a family advocate for ...
people & placesDebra McGhee-McCraryDeb McGhee-McCrary was named Chief Execu...
education & researchCommunity Health Workers as Support for Sickle Cell CareCommunity health workers are increasingl...
news & eventsWorld Sickle Cell Day with Special Guest Mr. Tony Adkins, TV Host Sandy Bodeau, Dr. Harrington, and Dr. AlvarezFriday, June 19, 2020 1:00PM to 2:15PM ...
education & researchStrategies to Avoid the FluIt’s cold and flu season and the usual...
send a message
Don’t forget to join the oneSCDvoice community!
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.