DISCLAIMERThe information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.
Trusted Resources: Community Center
Online groups, photo galleries and blogs
For more than a year, NeDina Brocks-Capla avoided one room in her large, brightly colored San Francisco house — the bathroom on the second floor. “It was really hard to bathe in here, and I found myself not wanting to touch the walls,” she explains. The bathroom is where Brocks-Capla’s son Kareem Jones died in 2013 at age 36 from sickle cell disease. It’s not just the loss of her son that upsets Brocks-Capla. She believes that if Jones had gotten the proper medical care, he might still be alive today. Patients and experts alike say it’s no surprise then that while life expectancy for almost every major malady is improving, patients with sickle cell disease can expect to die younger than they did more than 20 years ago. In 1994, life expectancy for sickle cell patients was 42 for men and 48 for women. A 2013 study found that life expectancy had dipped to 38 for men and 42 for women in 2005.
people & placesRobert H. Broyles, PhDRobert H. Broyles is founder and preside...
education & researchBarriers and Facilitators to Care for Individuals With Sickle Cell Disease in Central North Carolina: The Emergency ...Background: Sickle cell disease (SCD) i...
people & placesRobert Molokie, MDDr. Robert Molokie is a hematologist and...
education & research
Community CenterYou’d never know this 2-year-old has sickle cell anemiaWhen you meet 2-year-old Evelyn Islam, t...
Community CenterPlaying through sickle cellEighteen minutes in with no break, Billy...
Community CenterGOSH!About: Feature – A Sickle Cell Warrior’s StoryI am so proud to start this monthly feat...
send a message
Don’t forget to join the oneSCDvoice community!
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.