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Sickle cell disease afflicts about 100,000 people in the United States, many of them African Americans. It is an inherited blood disorder that can cause frequent infections and chronic pain.
It’s a disease that hits home for me and my family. My youngest son, Teemer Barry, was diagnosed with sickle cell disease when he was a baby. This past fall, he went off to college. Most importantly, Teemer has had only one serious pain crisis.
Going away for school while nursing a critically-ill disease can be especially hard for a young student. The goal is to help devise a care plan of independence that will hopefully lead to college graduation.
Community CenterKyriako Damavoletes Talks About the Stigma of Sickle Cell DiseaseKyriako Damavoletes has HbS beta thalass...
news & eventsSickle cell patients, families and doctors face a ‘fight for everything’Francesca Valentine is gearing up for a ...
videos & visualsSickle Cell, Racism, and the Armor of Radical Self Lovehttps://www.youtube.com/watch?v=m45DuiSc...
education & researchMental healthTreatment for depression and anxiety ...
Community CenterBrandi Abernethy: Nursing Student, Patient, Single MomWhen she was growing up in St. Petersbur...
education & researchThe Experience and Health-Related Quality of Life After Haploidentical Stem Cell Transplantation for Adults With Sic...Haploidentical hematopoietic stem cell t...
videos & visualsA Child Prodigy, a Painful Disease, and a Life-Changing Treatmenthttps://www.youtube.com/watch?v=SpzjD1ct...
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