DISCLAIMER
The information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.compose your message
message sent
email sent successfully
Trusted Resources: Community Center
Online groups, photo galleries and blogs
Listening to Sickle Cell Patients is Crucial During a Crisis
I recently was admitted to the hospital during a sickle cell crisis and because of suspected COVID-19. My experience was harrowing.
I have experienced many things as a sickle cell disease patient. I have had pneumonia more frequently than I can remember, suffered collapsed lungs, had deep vein thrombosis and pulmonary embolisms, spent weeks on end in intensive care, and been intubated a number of times. But this latest admission was the most traumatic of my life.
+myBinderRelated Content
-
videos & visualsConstance Benson Cured of Sickle Cell, Speaking at Sickle Cell Disease & Gene Editing Briefing in DChttps://www.youtube.com/watch?v=ROtPSLJl...
-
people & placesThe Valerie FundThe Valerie Fund has pediatric sickle ce...
-
videos & visualsFacebook Live: Stem Cells and Sickle Cell Diseasehttps://www.youtube.com/watch?v=IPzNx8i_...
-
education & researchCDC grand rounds: Improving the lives of persons with sickle cell diseaseApproximately 100,000 Americans have sic...
-
people & placesThalassaemia and Sickle Cell Society of AustraliaThalassaemia and Sickle Cell Australia (...
-
news & events2021 WEPSCF Rockin’ the Red – 16th Annual EventJoin us for a Zoom gathering as we celeb...
-
Community CenterUnder The Radar: Sickle Cell DiseaseIn the U.S., an estimated 100,000 Americ...
send a message
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.