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Part of Sickle Cell Disease on Somebody To Talk To

OneSCDvoice archive

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1,152 pages from 2017

  1. Education resources

    504 plan for education because of sickle cell disease

    Patient Education · 504 Plan/Individualized Education Program (IEP) · QUALITY OF LIFE · Accomodations · Living with SCD/Quality of Life · School

  2. Education resources

    Family functioning, medical self-management, and health outcomes among school-aged children with sickle cell disease: a mediation model

    Scientific Articles · QUALITY OF LIFE · Caregiver · Healthcare/Research · Living with SCD/Quality of Life · Parenting · Pediatrics/Child Care

  3. Education resources

    Splenectomy versus conservative management for acute sequestration crises in people with sickle cell disease

    Scientific Articles · Complications/Clinical Manifestations · Disease Management · Nonpharmacologic Therapy · Sickle Cell Crisis · Splenectomy · Splenic Sequestration

  4. Education resources

    The psychosocial impact of leg ulcers in patients with sickle cell disease: I don't want them to know my little secret

    Scientific Articles · QUALITY OF LIFE · Complications/Clinical Manifestations · Feelings and Experiences · Leg ulcers · Living with SCD/Quality of Life · Pain · Psychosocial · Stigma · Ulcers

  5. Education resources

    The spectrum of sickle hemoglobin-related nephropathy: from sickle cell disease to sickle trait

    Scientific Articles · Complications/Clinical Manifestations · Definitions · Disease Basics · Heterozygous · Pathophysiology · Renal Manifestations · Sickle Cell Disease/Sickle Cell Anemia · Sickle Cell Trait/HbAS

  6. Videos and visuals

    2017 April 29 SiNERGe Webinar on Bone Marrow Transplants

    Webinars · Bone Marrow Transplant/Allogeneic hematopoietic stem cell transplantation · Disease Management · Nonpharmacologic Therapy · Stem Cell Therapy

  7. Videos and visuals

    5 tips on how I manage sickle cell disease

    QUALITY OF LIFE · Videos · Living with SCD/Quality of Life

  8. Videos and visuals

    Back to School Tips for Sickle Cell Awareness Month

    QUALITY OF LIFE · Videos · Caregiver · Living with SCD/Quality of Life · School

  9. Videos and visuals

    Constance Benson Cured of Sickle Cell, Speaking at Sickle Cell Disease & Gene Editing Briefing in DC

    Webinars · Bone Marrow Transplant/Allogeneic hematopoietic stem cell transplantation · Disease Management · Feelings and Experiences · Living with SCD/Quality of Life · Nonpharmacologic Therapy · Stem Cell Therapy

  10. Videos and visuals

    Latoyia Webb - Sickle Cell Disease Survivor

    Videos · Feelings and Experiences · Living with SCD/Quality of Life · Pain

  11. Videos and visuals

    Sickle cell sunday 10, Telling people your limitations

    QUALITY OF LIFE · Videos · Caregiver · Living with SCD/Quality of Life

  12. Community stories

    Adulting is especially difficult for youth with special health care needs

    Patient Stories · Adolescent/Young Adult Transition · Caregiver · Living with SCD/Quality of Life · Psychosocial · Responsibility

OneSCDvoice archive — 2017 | oneSCDvoice