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182 pages from 2022
Education resources
Facts About Sickle Cell Disease
sickle cell disease · sickle cell · cell disease · sickle · cell · Patient Education
Sickle Cell Disease Goes Beyond Red Blood Cells and, Early on, Progresses to a Chronic Vascular Disease Vaso-Occlusive Crises May Account for a Majority of the Burden of Sickle…
Education resources
Genes for Teens with Sickle Cell Disease
sickle cell disease · sickle cell · cell disease · sickle · cell · Patient Education
People with sickle cell disease inherit a hemoglobin S gene from one parent and another abnormal hemoglobin gene from the other parent.
Community stories
New York Jets Running Back Tevin Coleman: Sickle-Cell Trait Threatened My Career. Now, I'm Raising A Daughter With Sickle-Cell Disease
Patient Stories
New York Jets running back Tevin Coleman didn't know that he carried sickle-cell disease until he was in college. That's when the rigorous training required for his…
Education resources
Real-World Effectiveness of Voxelotor for Treating Sickle Cell Disease in The US: A Large Claims Data Analysis
sickle cell disease · sickle cell · cell disease · sickle · cell · Scientific Articles
Sickle cell disease (SCD) is a genetic disease that impacts patients’ quality of life, healthcare costs, and life expectancy. Elevated sickle hemoglobin (HbS), which readily…
Education resources
Sickle Cell School Outreach
sickle cell disease · sickle cell · cell disease · sickle · cell · information · Patient Education
The Sickle Cell Center at Children’s Hospital of Philadelphia has developed comprehensive information on sickle cell disease and how it can affect the school life of children.
Education resources
Taking Control: Teens with Sickle Cell Disease
sickle cell disease · sickle cell · cell disease · sickle · cell · Patient Education
Taking Control: Teens with Sickle Cell Disease offers many details that are crucial to your health. For this reason, it is best to read only one unit of the booklet at a time.
News and meetings
Voxelotor for Sickle Cell Disease Wins FDA Nod for Patients as Young as 4
Spotlight
The FDA Friday approved the wider use of voxelotor (Oxbryta) in patients with sickle cell disease (SCD) as young as 4 years of age.
Education resources
10 Tips to Get the Most Out of Your Health Insurance Tip Sheet
Patient Education · health insurance
As a complementary document to PAF's Health Insurance Education Series, this tip sheet offers 10 tips to help you get the most out of your health insurance.
Financial assistance
Co-Pay Relief Brochure
financial programs
This brochure provides eligibility criteria, application process and contact information for the program.
Education resources
How Health Insurance Works Tip Sheet
Patient Education
As a complementary document to PAF's Health Insurance Education Series, this tip sheet breaks down the various insurance plan types as well as common terms you need to understand.
Education resources
Understanding Your Health Insurance Policy Documents Tip Sheet
Patient Education
As a complementary document to PAF's Health Insurance Education Series, this tip sheet explains how to read important insurance documents.
Featured topics
Caregiver Support
Caregiver · Diet · Grief · Knowledge/Health literacy · Parenting · Responsibility · Travel