OneSCDvoice archive
Explore reporting, meetings, people, education, community stories and resources from the original OneSCDvoice website.
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519 pages from 2018
People
Bosede Afolabi, MBChB(Ife), DM(Notts), FRCOG, FWACS, FMCOG
Healthcare Providers · Healthcare/Research · OB-Gyn
Dr. Afolabi is a gynaecologist with interests in maternal and fetal medicine, minimal access (laparoscopic) surgery and medical education. She is passionate about reducing…
People
Dawn Canada, LCSW
Patient Support Professionals · disease awareness/support · patient advocacy · Resources/Patient Support
People
Donald B. Kohn, MD
sickle cell · cell · Researchers · Healthcare/Research · Hematology · Pediatrics/Child Care
Dr. Donald Kohn, MD, is a Distinguished Professor of pediatrics and microbiology, immunology and molecular genetics in the life sciences. He focuses on the development of new…
People
Jeffrey Andolina, MD, MS
Healthcare Providers · Healthcare/Research · Hematology · Oncology
Dr. Andolina's interest in bone marrow transplant for patients with sickle cell anemia. He is most interested in the treatment and comprehensive care for children with leukemia…
People
Lisa M. Shook, MA, MCHES, CCP
Patient Support Professionals · Healthcare/Research · Hematology · Oncology
People
Merlin Crossley, DPhil
sickle cell · sickle · cell · Researchers · Genetics · Healthcare/Research
Dr. Merlin Crossley is Deputy Vice-Chancellor (Education) at UNSW and Professor of Molecular Biology and is interested in understanding the fundamental molecular mechanisms by…
Education resources
Conditions screened by state
Patient Education · Disease Basics · Newborn Screening · Recommendations/Precautions · Screening
Education resources
CYP2C8 and CYP2C9 metabolic profiles and frequency of emergency department visits for sickle cell disease pain management
Abstracts & Posters · Disease Basics · Genotype/Inheritance Patterns
Education resources
Dexmedetomidine as an adjuvant to analgesic strategy during vaso-occlusive episodes in adolescents with sickle cell disease
Abstracts & Posters · Complications/Clinical Manifestations · Dexmedetomidine · Disease Management · Investigational Therapy/Future Therapy · Sickle Cell Crisis · Vaso-occlusive Crisis/Pain Crisis
Education resources
Emergency Room 101 (tips for the empowered patient)
Patient Education · QUALITY OF LIFE · Coping · Emergency Departments/Hospitalizations · HealthCare Issues/Services · Healthcare/Research · Living with SCD/Quality of Life