OneSCDvoice archive
Explore reporting, meetings, people, education, community stories and resources from the original OneSCDvoice website.
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519 pages from 2018
Videos and visuals
UH BEATS program
Videos · Alternative Therapy · Disease Management · Music therapy · Nonpharmacologic Therapy
Videos and visuals
Vaso occlusive Crisis Pain Assessment & Management
Videos · Complications/Clinical Manifestations · Emergency Departments/Hospitalizations · HealthCare Issues/Services · Healthcare/Research · Sickle Cell Crisis · Vaso-occlusive Crisis/Pain Crisis
Education resources
Acute Vaso-Occlusive pain associated with the onset of menstruation is distinct from dysmenorrhea in sickle cell disease
Abstracts & Posters · Complications/Clinical Manifestations · Reproductive Issues/Complications · Sickle Cell Crisis · Vaso-occlusive Crisis/Pain Crisis
Videos and visuals
Connect with the sickle cell community on the SMART social wall
Videos · disease awareness/support · Resources/Patient Support
Education resources
Decreased hospital readmissions for vaso occlusive crisis with implementation of a Sickle Cell Pain Action Plan (SPAP)
Abstracts & Posters · Complications/Clinical Manifestations · Emergency Departments/Hospitalizations · HealthCare Issues/Services · Healthcare/Research · Sickle Cell Crisis · Vaso-occlusive Crisis/Pain Crisis
Videos and visuals
Discover trusted sickle cell resources
Videos · disease awareness/support · Resources/Patient Support
Education resources
Health disparity in hematopoietic cell transplantation for sickle cell disease: Analyzing the association of insurance and socioeconomic status among children undergoing hematopoietic cell transplantation
Abstracts & Posters · Bone Marrow Transplant/Allogeneic hematopoietic stem cell transplantation · Disease Management · Financial · Health Insurance/Medicaid Coverage · Living with SCD/Quality of Life · Nonpharmacologic Therapy · Stem Cell Therapy
Videos and visuals
How to register for oneSCDvoice
Videos · disease awareness/support · Resources/Patient Support
Education resources
Methacholine challenge test reveals a high prevalence of subclinical severe airway hyper-reactivity in children and young adults with sickle cell disease which correlates with higher sickle acute events and acute chest
Abstracts & Posters · Complications/Clinical Manifestations · Pulmonary Complications
Videos and visuals
oneSCDvoice leadership
Videos · disease awareness/support · Resources/Patient Support
Education resources
Pain and opioid use after reversal of sickle cell disease following hematopoietic stem cell transplant
Abstracts & Posters · Analgesics/Pain Medication · Bone Marrow Transplant/Allogeneic hematopoietic stem cell transplantation · Disease Management · Nonpharmacologic Therapy · Opioids · Pharmacotherapy/Drug Therapy · Stem Cell Therapy
Education resources
Prospective controlled trial on endurance exercise training in adult sickle cell disease patients
QUALITY OF LIFE · Abstracts & Posters · Exercise/Physical activity · Lifestyle · Living with SCD/Quality of Life