OneSCDvoice archive
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460 pages from 2019
People
Clayton Andrews, LAPC
sickle cell disease · sickle cell · cell disease · sickle · cell · Community Advocates · Healthcare Providers · Patient Support Professionals · Researchers · counseling · patient advocacy · Psychiatry/Psychology
Clayton is the Chair and co-founder of the Sickle Cell Champions Association, a mentoring organization geared and designed for the guidance and empowerment of young males with…
Education resources
Clinical outcomes associated with sickle cell trait: A systematic review
Scientific Articles · Outcomes · Pulmonary Embolism (PE) · Renal Manifestations · Screening · Sickle Cell Trait Testing · Sickle Cell Trait/HbAS
People
Edward J. Benz Jr., MD
Researchers · Genetics · Hematology
Dr. Edward J. Benz Jr. is President and CEO emeritus of Dana-Farber Cancer Institute, Director emeritus and Principal Investigator of Dana-Farber/Harvard Cancer Center, and a…
Education resources
Hydroxyurea for children with sickle cell anemia in Sub-Saharan Africa
Scientific Articles · African-American/African · Hydroxyurea/Hydria/Droxia
Education resources
Integration of neuropsychology services in a sickle cell clinic and subsequent healthcare use for pain crises
Scientific Articles · Emergency Departments/Hospitalizations · Neuropsychological/Cognitive Impairment · Outcomes · Vaso-occlusive Crisis/Pain Crisis
Education resources
Maternal/Perinatal Outcome in Women With Sickle Cell Disease: A Comparison of Two Time Periods
Scientific Articles · Newborn Screening · Pregnancy Complications/Neonatal complications · Prenatal Screening · Women
Education resources
Metabolic syndrome among adults living with sickle cell disease
Scientific Articles · Cardiovascular Manifestations · Hypertension · Metabolic Syndrome-MetS · Obesity
Education resources
Moderate-intensity endurance-exercise training in patients with sickle-cell disease without severe chronic complications (EXDRE): An open-label randomised controlled trial
Scientific Articles · QUALITY OF LIFE · Endurance-exercise training · Exercise Precautions
Education resources
Pediatric pain screening identifies youth at risk of chronic pain in sickle cell disease
Scientific Articles · Biopsychosocial · Pain Screening · Vaso-occlusive Crisis/Pain Crisis
People
Stuart H. Orkin, MD
sickle cell disease · sickle cell · cell disease · sickle · cell · Researchers · Hematology · Investigational Stem Cell Therapy · Oncology · Pediatrics/Child Care
Dr. Stuart H. Orkin is currently a Howard Hughes Medical Institute Investigator and was elected to the 2019-2020 Council of the National Academy of Medicine. His work on the…
People
Swee Lay Thein, MB, BS, FRCP, FRCPath, DS
sickle cell disease · sickle cell · cell disease · sickle · cell · Researchers · Hematology · Thalassaemia
Swee Lay Thein’s research explores the underlying genetic mechanisms affecting the formation of fetal hemoglobin, which could lead to new ways to reduce the severity of sickle…
Education resources
The current state of sickle-cell trait: Implications for reproductive and genetic counseling
Scientific Articles · QUALITY OF LIFE · Reproductive Counseling · Sickle Cell Trait/HbAS