OneSCDvoice archive
Explore reporting, meetings, people, education, community stories and resources from the original OneSCDvoice website.
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615 pages from 2020
Education resources
Caregivers and Sickle Cell Disease
Patient Education · CAREGIVER SUPPORT · Caregiver · disease awareness/support
Education resources
Clinical and Genetic Predictors of Priapism in Sickle Cell Disease: Results From the Recipient Epidemiology and Donor Evaluation Study III Brazil Cohort Study
Scientific Articles · Epidemiology · Priapism
Videos and visuals
Patient Perspective: The Journey of Pain in Sickle Cell Disease
QUALITY OF LIFE · Videos · Feelings and Experiences · Vaso-occlusive Crisis/Pain Crisis
Education resources
Prevalence of Enuresis and its Impact in Quality of Life of Patients With Sickle Cell Disease
Scientific Articles · QUALITY OF LIFE · Enuresis/Bedwetting · Living with SCD/Quality of Life
Videos and visuals
Sickle Cell Disease: Why Is It Hard to Talk About Our Pain?
QUALITY OF LIFE · Videos · disease awareness/support · patient advocacy · Vaso-occlusive Crisis/Pain Crisis
Videos and visuals
Sickle Cell Patient Finds a Better way of Living Through Apheresis
QUALITY OF LIFE · Videos · courage and inspiration · disease awareness/support
Videos and visuals
Sickle Cell Speaks: Misconceptions About the Disease
Videos · disease awareness/support · Myths and Misconceptions
News and meetings
2021 Sickle Cell Houston Amazing Race & 5K/1K - Virtual
Happenings
People
Agnes Nsofwa, RN, MSN, BBA
Community Advocates
Videos and visuals
Art of Patient Advocacy by Shamonica Wiggins
Webinars · disease awareness/support · patient advocacy
News and meetings
SCDAA MARAC Position on 2020 School Reopening
Spotlight
Places
Australian Sickle Cell Advocacy Inc.
Community Organizations · disease awareness/support · patient advocacy