OneSCDvoice archive
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News and meetings
Emerging opportunities in sickle cell disease cure, treatment and pain management
Happenings
News and meetings
ASH launches sickle cell disease clinical trials network to accelerate therapy development
Clinical Trials and Research
News and meetings
Boston Children’s Hospital receives grant for sickle cell disease research
Clinical Trials and Research
News and meetings
Healthcare advocates aim to better inform community on sickle cell realities
Spotlight
News and meetings
McCourty twins praise aunt who lost battle with sickle cell disease for ‘defying the odds’
People
News and meetings
Surprise of a lifetime: Devin McCourty gives away two Super Bowl LIII tickets
People
News and meetings
Crizanlizumab designated FDA breakthrough therapy for potential in vaso-occlusive crisis prevention
Clinical Trials and Research
News and meetings
FDA grants CRISPR gene therapy fast track designation for sickle cell disease
Clinical Trials and Research
Community stories
Brandi Abernethy: Nursing Student, Patient, Single Mom
Patient Stories · QUALITY OF LIFE · Coping · courage and inspiration · School
Education resources
Executive functioning mediates the relationship between pain coping and quality of life in youth with sickle cell disease
Scientific Articles · QUALITY OF LIFE · Coping · Living with SCD/Quality of Life · Pain · Psychosocial