Trusted Resources: Evidence & Education

Scientific literature and patient education texts

Back to Evidence & Education / Scientific Articles

A missed opportunity to address a national shame: the case of sickle cell disease in the United States

key information

source: JAMA Pediatrics

year: 2019

authors: Freed GL

summary/abstract:

In November 2018, the Centers for Medicare & Medicaid Services (CMS) announced there would be no changes to the core set of 25 pediatric quality measures on which states report performance for the Medicaid program.1 In doing so, CMS ignored the almost unanimous (19-1) recommendation of the Pediatric Measure Application Partnership (P-MAP), an expert committee empaneled by the agency, and also importantly missed a historic opportunity to definitively address a national shame, the poor state of care provided to children with sickle cell disease (SCD).

organization: Centers for Medicare & Medicaid Services (CMS)

DOI: 10.1001/jamapediatrics.2019.1536

read more

To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information

The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.

Close

To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information

The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.

Close