Sickle Cell Disease news and research updates
Research readouts, treatment and access decisions, and community updates for people living with sickle cell disease and the people who care for them — each one dated, with a link to the original source where there is one.
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Toward Health Care Structure–Informed Measures of Transition Success for Young Adults With Sickle Cell Disease
In 2010, analysis of the Dallas Newborn Cohort established a new reality for sickle cell disease (SCD): more than 90% of affected infants born after 1983 survive to adulthood. 1…
Experts worry over drug abuse among SCD patients
Aside from swelling, delayed growth and infections, one of the symptoms people living with Sickle-Cell Disease often struggle with is pain episodes, which can last from hours to…
Here's Why Shares in Novo Nordisk Rival, Agios Pharmaceutical, Soared This Week
Key Points Agios stock surged after FDA granted priority review for mitapivat in sickle cell disease. Mitapivat showed mixed Phase 3 results, and competition is coming from Novo…
Predictors of nephropathy in sickle cell disease: A cross-sectional analysis across age and clinical phenotypes in Zaria, Nigeria
Abstract Background: Sickle cell disease (SCD) is associated with significant complications, including nephropathy, which can progress to end-stage renal disease. While risks for…
Study links painful period to mental health issues among women with sickle cell disease
KINGSTON, Jamaica—Research has found a strong correlation between painful periods and high rates of depression, anxiety and suicidal thoughts among women living with sickle cell…
Study Links Painful Period to Mental Health Issues Among Women with Sickle Cell Disease
The Full Story Research has found a strong correlation between painful period and high rates of depression, anxiety and suicidal thoughts among women living with sickle cell…
What California’s Historic Sickle Cell Investment Means for Black Patients and Families
For many people in the sickle cell disease (SCD) community, the journey has been full of challenges. These challenges come not just from the disease, but also from a healthcare…
Elevated Cerebral Blood Flow in Distal and Intermediate Arterial Territories in Pediatric Sickle Cell Anemia
Abstract Children with sickle cell anemia (SCA) are at increased risk of cerebrovascular complications due to chronic anemia and progressive vascular injury, yet how their…
Mandibular infarction and sterile subperiosteal fluid collection in patients with sickle cell disease: a report of two cases
Abstract Vaso-occlusive crisis is the primary cause of morbidity and emergency department visits in patients with sickle cell disease (SCD) and may lead to acute bone infarction…
Over 8.8million children live with sickle cell disease in Sub-Saharan Africa —Lancet
A new large-scale systematic review and modelling analysis has estimated that more than 8.8 million children and adolescents in sub-Saharan Africa were living with sickle cell…
A prospective study of high-impact chronic pain in sickle cell disease: the Sickle Pain-Related Impact (SPiRIt) study
Risk factors and outcomes of high-impact chronic pain (HICP), ie, chronic pain (CP) and substantial restriction of participation in work, social, or self-care activities, are not…
Virginia budget expands Medicaid access to sickle cell gene therapy
The funding is tied to a federal model designed to help Medicaid programs pay for expensive cell and gene therapies. It would help cover treatment for patients on Medicaid and…