Sickle Cell Disease news and research updates
Research readouts, treatment and access decisions, and community updates for people living with sickle cell disease and the people who care for them — each one dated, with a link to the original source where there is one.
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- Happeningsscdcoalition.org
2026 Cell and Gene Therapies Summit
The American Society of Gene and Cell Therapy is hosting this free virtual summit that will bring together patients, caregivers, advocates, researchers, and industry leaders for…
- Newssicklecellanemianews.com
Disease burden heavy for SCD patients in US, despite promise of gene therapy
In the U.S., having sickle cell disease (SCD) continues to place a heavy clinical burden on patients, who often require multiple medications, frequent blood transfusions, and the…
Woman with rare blood feels 'honoured' to donate
A woman whose blood donations are so rare they are frozen for up to 30 years said she feels "very special and honoured" to be able to help sick patients. Mina Stoddart-Stones…
Iganga General Hospital reports high cases of sickle cell disease
Health workers in Iganga district have raised alarm over what they described as worrying cases of sickle cell disease, disclosing that between 5 and 10 new cases are registered…
Sickle Cell Disease Treatment Market Size, Share & Industry Analysis, By Treatment Modality [Bone Marrow Transplant, Blood Transfusion, Pharmacotherapy {Hydroxyurea, and Branded Products (Endari, Adakveo, Oxbryta, Zynteglo, PYRUKYND (Mitapivat), CTX001, I
KEY MARKET INSIGHTS Listen to Audio Version The global sickle cell disease treatment market size was estimated at USD 3.94 billion in 2025 and is projected to reach USD 4.73…
How the Brain Compensates for Sickle Cell Disease
Summary: Sickle cell disease (SCD) is widely recognized as a blood disorder, but new research reveals its profound impact on the brain’s architecture. Using advanced MRI imaging…
Nigerians mourn as first class graduate who battled sickle cell dies
Nigerians have taken to social media to mourn the death of first class graduate and sickle cell advocate Anisa Ishaq-Balogun, whose passing has triggered an outpouring of tributes…
Expanding Comprehensive SCD Care in Western Kenya: The AMPATH Program
Of the estimated 515,000 infants born with sickle cell disease (SCD) each year around the world, many children in resource-limited settings experience early mortality. In…
New study shows how sickle cell affects brain function
Sickle cell disease is often thought of solely as a blood disorder, but new research from the Wood Neuro Research Group provides measurable evidence that it can reshape how brain…
- Newscancernursingtoday.com
How Does Myeloablative HSCT Influence Pulmonary Outcomes in Pediatric Patients With Sickle Cell Disease?
Myeloablative hematopoietic stem cell transplantation (HSCT) “resulted in stable pulmonary function” among pediatric patients with sickle cell disease (SCD), according to findings…
- Fundraising Eventsrunsignup.com
Sickle Cell Warrior Walk & Run 5K
Sickle Cell Warrior Walk & Run 5K Sat September 19 - Wed September 30, 2026 5K Run/Walk Price: $44.45 incl. $4.45 Fee Date Range: 09/19 Time: 9:00AM CDT - 10:00AM CDT
Blood test may improve kidney damage detection in children with SCD
A blood test measuring levels of the protein cystatin C may provide a more reliable way to monitor for kidney problems in children and young adults with sickle cell disease (SCD)…