Sickle Cell Disease news and research updates
Research readouts, treatment and access decisions, and community updates for people living with sickle cell disease and the people who care for them — each one dated, with a link to the original source where there is one.
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Cure Sickle Cell Initiative recommendations on common data elements for sickle cell disease gene therapy trials
Abstract The Cure Sickle Cell Initiative (CureSCi), created by the National Heart, Lung, and Blood Institute, has developed data standards to increase interoperability and…
Thrombocytosis and the generation of platelet-derived microparticles in the pathophysiology of sickle cell disease
Summary Sickle cell disease (SCD) is a complex thrombo-inflammatory disorder in which haemolysis, platelet activation, thrombocytosis, inflammation and endothelial activation…
Genetic variants in red blood cell adhesion-related genes influence the severity of sickle cell anemia in a malaria-endemic region : Short title: Genetic variants in red blood cell adhesion-related genes in sickle cell anemia
Abstract Background: Sickle cell anemia (SCA) is a genetic disease marked by abnormal hemoglobin S and sickle-shaped red blood cells. It is highly prevalent in sub-Saharan Africa…
Beyond the Diagnosis: Lived Experiences of People with Sickle Cell Disease in South India
Abstract Background Sickle cell disease (SCD) is an inherited blood disorder characterized by the presence of sickle-shaped erythrocytes, leading to haemolytic anemia…
10-Year Study Affirms Life-Changing Benefits of Hydroxyurea for Sickle Cell Anemia
Cincinnati Children’s researchers collaborate with colleagues in Uganda and beyond to help children where the disease burden is highest. New findings published in NEJM. Fewer…
Rethinking the cost of curing sickle cell disease
Gene therapies for sickle cell disease are already changing lives in high-income countries, but in places like Uganda—where the burden of disease is among the highest in the…
Ten Years of Hydroxyurea for Ugandan Children with Sickle Cell Anemia
Sickle cell anemia is a severe inherited hemoglobinopathy with a large global burden, particularly in sub-Saharan Africa. 1 Hydroxyurea, which is standard therapy for sickle cell…
Beats for Blood Sickle Cell block party returns this June
The second annual Beats for Blood: Sickle Cell Awareness Block Party returns on June 27th. “We all are connected. This isn’t a ‘black disease.’ I know that sickle cell is usually…
Subclinical malaria in sickle cell disease in Northern Uganda: prevalence, predictors, and hematologic impact
Abstract Objectives Sickle Cell Disease (SCD), characterized by persistently low hemoglobin (Hb) and hematocrit levels, is among the leading causes of under-five mortality in high…
Rotarians push for mass sickle cell testing across Uganda
The Ministry of Health says more than 500,000 children have been tested over the past 10 years, with more than 34,000 found positive for the disease. However, experts warn that…
Inmate who died had blood disease, belonged in a hospital, family says
CaSandra Pearson had sickle cell anemia and mental health issues, her family says. They question the medical care she received at the Bexar County Jail. An inmate who died after…
Higher vitamin A linked to better lung function in sickle cell anemia
Study involved 70 children and adolescents with SCA Higher vitamin A levels in the blood were significantly associated with better lung function in children and adolescents with…