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Trusted Resources: News & Events
Latest announcements and gatherings
SCDAA National SCD Policy Forum
The Sickle Cell Disease Association of America, Inc. is proud to present the first-ever National SCD Policy Forum on March 21 & 22, 2023. This tri-collaborative event is hosted by SCDAA, Sick Cells (@sickcells), and the Sickle Cell Community Consortium (@sccconsortium). Our three organizations are working hard to host the most comprehensive advocacy event for sickle cell disease (SCD) to date.
The goal of this event is to:
• Bring together SCD advocates from across the country.
• Build awareness of federal opportunities for SCD.
• Educate legislators on funding and policy interventions that support the needs of SCD Warriors and the SCD community as a whole.
Day 1 will be full of trainings on the 2023 federal priorities for SCD.
Day 2 is our virtual Hill Day, a time for advocates to connect directly with their federal legislators.
news & eventsLong-term opioids may not be best pain management option for all sickle cell patientsSmall study shows some on opioids report...
education & researchThe Association Between Timely Opioid Administration and Hospitalization in Children With Sickle Cell Disease Presen...Objective: To evaluate the association ...
education & researchNon-invasive imaging of oxygen extraction fraction in adults with sickle cell anaemiaSickle cell anaemia is a monogenetic dis...
people & placesModupeoluwa BabawaleMs. Modupe Babawale is a passionate warr...
people & placesJennifer Krajewski, MDJennifer Krajewski has served the Pediat...
Community CenterA Sickle Cell Warrior Survival Story— Timi Edwin“When I was 10, I was flogged by a tea...
news & eventsEmerging opportunities in sickle cell disease cure, treatment and pain managementIn support of City of Hope’s recent CI...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.