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OneSCDvoice archive

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112 pages from 2023

  1. Education resources

    Gene Therapy: What You Need to Know (Warrior FAQs)

    sickle cell disease · sickle cell · cell disease · sickle · cell · Patient Education · CRISPR · Gene Editing · patient advocacy

  2. Videos and visuals

    Priapism and what to do if you experience it

    Videos · Other Complications/Conditions

  3. News and meetings

    SCDAA Statement About Gene Therapy Approval

    Spotlight

  4. Videos and visuals

    Teen is one of the first ever to get his genes edited

    Videos · CRISPR · Gene Editing · Living with SCD/Quality of Life

  5. News and meetings

    FDA approval of gene therapies for sickle cell disease: Q&A with NHLBI Director Dr. Gary Gibbons and NHLBI’s Division of Blood Diseases and Resources Director Dr. Julie Panepinto

    Business

  6. Education resources

    I Believe in Therapy Campaign Presentation – 2023

    sickle cell · sickle · cell · community · Patient Education · Depression/Mental Illness · Feelings and Experiences · Living with SCD/Quality of Life

  7. Education resources

    I Believe in Therapy Toolkit

    Patient Education · Depression/Mental Illness · Feelings and Experiences · Living with SCD/Quality of Life · Stigma

  8. Videos and visuals

    Introducing: The I Believe in Therapy Campaign

    Videos · Depression/Mental Illness · Feelings and Experiences · Living with SCD/Quality of Life

  9. News and meetings

    An Ethical and Financial Obligation for Sickle Cell Disease Gene Therapy in the United States

    Business

  10. Education resources

    Evidence-based interventions for reducing sickle cell disease-associated morbidity and mortality in sub-Saharan Africa: A scoping review

    sickle cell disease · sickle cell · cell disease · sickle · cell · Patient Education · Scientific Articles

  11. News and meetings

    Sickle Cell Community Consortium: Sickle Cell Holiday Expo 2023

    Happenings

  12. Education resources

    Sickle Cell Disease Coalition: Build Your Own SCD School Binder

    Patient Education · disease awareness/support · Educational Support · Resources/Patient Support

OneSCDvoice archive — 2023 | oneSCDvoice