OneSCDvoice archive
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3,376 pages
Education resources
Mechanisms of Pain in Sickle Cell Disease
Scientific Articles · Pain Relief/Pain Crisis · Vaso-occlusive Crisis/Pain Crisis
Education resources
Perceptions of US Adolescents and Adults With Sickle Cell Disease on Their Quality of Care
Scientific Articles · QUALITY OF LIFE · Adolescent/Young Adult Transition · disease awareness/support · HealthCare Issues/Services · Living with SCD/Quality of Life
Education resources
Racism and Health-Related Quality of Life in Pediatric Sickle Cell Disease: Roles of Depression and Support
Scientific Articles · QUALITY OF LIFE · Anxiety · Depression/Mental Illness · Discrimination · Racism
Education resources
Self‐Management Recommendations for Sickle Cell Disease: A Content Analysis of Websites
Abstracts & Posters · Coping · Daily Care/Activities/coping · Educational Support
Education resources
Sleep Disturbance in Adults With Sickle Cell Disease: Relationships With Executive and Psychological Functioning
Scientific Articles · Coping · Neuropsychological/Cognitive Impairment · Sleep Disorders
News and meetings
Partnership to Ensure Supply of LentiGlobin, Potential Gene Therapy
Clinical Trials and Research
News and meetings
Vitamin D Supplements May Reduce Pain-related Emergency Room Visits in Children With SCD
Spotlight
Videos and visuals
Meet the oneSCDvoice Community 2020!
infographics/slides · Sickle Cell Disease/Sickle Cell Anemia · Surveillance