OneSCDvoice archive
Explore reporting, meetings, people, education, community stories and resources from the original OneSCDvoice website.
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1,152 pages from 2017
Community stories
Living With Sickle Cell: ‘I Don’t Know What It Means to Be Without Pain’
Patient Stories · QUALITY OF LIFE · Feelings and Experiences · Living with SCD/Quality of Life · Pain · Psychosocial · Racism
Community stories
Sickle Cell Disease isn’t Laughable, But It Has a Comedic Ambassador --- Kier “Junior” Spates
Patient Stories · Definitions · disease awareness/support · Disease Basics · Resources/Patient Support · Sickle Cell Disease/Sickle Cell Anemia
Community stories
The Bad Blood: My Life With Sickle Cell Anaemia
Patient Stories · Feelings and Experiences · Living with SCD/Quality of Life · Pain
Community stories
The Green Family Story
sickle cell · sickle · cell · Patient Stories · QUALITY OF LIFE · Living with SCD/Quality of Life · Newborn Screening · Reproductive Health
Community stories
Unheard Cries of Despair
Patient Stories · QUALITY OF LIFE · Feelings and Experiences · Isolation · Living with SCD/Quality of Life · Pain
Community stories
A Career Inspired by Disease
sickle cell · sickle · cell · Patient Stories · QUALITY OF LIFE · Feelings and Experiences · Living with SCD/Quality of Life
Community stories
Here to Stay — Living With Sickle Cell Disease
Patient Stories · QUALITY OF LIFE · Coping · Feelings and Experiences · Living with SCD/Quality of Life
Community stories
People With Sickle Cell Are Seen as Hypochondriacs or Drug Addicts. Even a Nine-Year-Old Has to Scream to Get the Care They Need
Patient Stories · QUALITY OF LIFE · Caregiver · Feelings and Experiences · Living with SCD/Quality of Life
News and meetings
Capitol Hill Briefing Held to Encourage Sickle Cell Research and Treatment
Happenings