DISCLAIMERThe information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.
compose your message
email sent successfully
Trusted Resources: Community Center
Online groups, photo galleries and blogs
The Green Family Story
AJ had his first sickle cell crisis at about 8 months. We didn’t really know what to expect with a crisis, but the early newborn screening test was helpful because we knew he had sickle cell disease. When he had his first painful sickle cell crisis we would never have known to take him to the hospital. We probably would have just thought he was crying to be crying and put a bottle in his mouth. We knew something had to be wrong with him and we didn’t take it lightly. We took him to the hospital and they said that he was having a crisis in the top of his foot. It was important to have the newborn screening done so that we knew to watch for these things. If we hadn’t had the newborn screening done we wouldn’t have known what was going on with him and sought appropriate care right away.
education & researchThe current state of sickle-cell trait: Implications for reproductive and genetic counselingSickle cell trait (SCT) is unique among ...
education & researchProspective controlled trial on endurance exercise training in adult sickle cell disease patientsSickle cell disease (SCD) is the most co...
Community CenterToday’s Faces of Sickle Cell Disease: Tesha SamuelsTesha Samuels was diagnosed with SCD at ...
videos & visualsStepping Up: Calvanay’s advicehttps://www.youtube.com/watch?v=_x9Dhrim...
videos & visualsOur Sickle Life Season 03 Episode 04 – Hear Our Storieshttps://www.youtube.com/watch?v=2uD-Y0t-...
Community CenterT-Boz: Vote on Tuesday Like Your Health Depends on ItAs a mother, I know that I have a respon...
videos & visualsWorld Sickle Cell Dayhttps://www.youtube.com/watch?v=cj-WTIDi...
send a message
Don’t forget to join the oneSCDvoice community!
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.