OneSCDvoice archive
Explore reporting, meetings, people, education, community stories and resources from the original OneSCDvoice website.
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112 pages from 2023
Community content
Mental Health Resources for Black, Indigenous and People of Color (BIPOC)
services & support · counseling · Depression/Mental Illness · Health Maintenance · Resources/Patient Support · Stress · Stress Reduction
Community stories
The challenges of being a caregiver to my cousin with sickle cell
Caregiver Stories · Caregiver · Fatigue · Feelings and Experiences · Isolation · Knowledge/Health literacy · Responsibility
Community stories
The Rise and Fall of My Mental Health With Sickle Cell
sickle cell · sickle · cell · Patient Stories · dating · Depression/Mental Illness · Patient Transitions · Relationships · Romantic relationship
News and meetings
Society of Pediatric Psychology Fall Virtual Conference
Happenings
News and meetings
Class of 2021-2023 Graduation Book
Happenings
Education resources
Women with Sickle Cell Disease and Preconception Care: What to Know Before Getting Pregnant
Patient Education · Family Planning · Pregnancy · Pregnancy Complications/Neonatal complications · Prenatal Screening · Reproductive Counseling
News and meetings
FDA Accepts Biologics License Applications for exagamglogene autotemcel (exa-cel) for Severe SCD and Transfusion-Dependent Beta Thalassemia
Spotlight
News and meetings
SCDAA Teams with MedicAlert Foundation to Improve Emergency Outcomes During Sickle Cell Crises
Business
News and meetings
MARAC Statement: Crizanlizumab (Adakveo)
Spotlight
News and meetings
SCDAA Masterclass Speaker Series: All Things Considered – SCD Treatment: A Personal Choice
Happenings
News and meetings
NHLBI Annual Sickle Cell Disease Research Meeting
Happenings
Community stories
Cheat Codes: A Sickle Cell Podcast: International Legends of Sickle Cell - Professor Clarisse Lobo & Dr. Kleber Fertrin
sickle cell · sickle · cell · community · Community Interviews · disease awareness/support · patient advocacy · Resources/Patient Support