OneSCDvoice archive
Explore reporting, meetings, people, education, community stories and resources from the original OneSCDvoice website.
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615 pages from 2020
Education resources
Coronavirus (COVID-19) – General Information | Centers for Disease Control and Prevention
Patient Education · COVID-19
News and meetings
COVID-19 Resources for Non-Profit Leaders and the Community | National Organization for Rare Disorders
Spotlight
Videos and visuals
Dr. Freda Gives the 411 on Sickle Cell Disease
Videos · disease awareness/support · Disease Basics · Educational Support
Community stories
Sickle Cell + COVID-19 + Mental Health | The Sickle Cell Podcast
QUALITY OF LIFE · Community Interviews · COVID-19 · Psychosocial
Education resources
Sickle Cell Disease Hotline | Cayenne Wellness Center and Sickle Cell Disease Education & Awareness
Patient Education · COVID-19 · Sickle Cell Disease/Sickle Cell Anemia
News and meetings
COVID-19 Health Alert for People With Sickle Cell Disease and Their Caregivers (Adapted for Sub-Saharan Africa)
Spotlight
News and meetings
Sickle Cell Disease and COVID-19: An Outline to Decrease Burden and Minimize Morbidity (Adapted for Sub-Saharan Africa)
Spotlight
News and meetings
Community Congress Ad Hoc COVID-19 Response Working Group Webinar
Happenings
News and meetings
NORD/EURORDIS-Rare Diseases Europe Joint Statement on COVID-19 and Orphan Drug Legislation
Spotlight
Education resources
Transition Toolkit – Sickle Cell Disease Coalition
Patient Education · Adolescent/Young Adult Transition · Patient Transitions
Education resources
FDA advises patients on use of non-steroidal anti-inflammatory drugs (NSAIDS) for COVID-19
Patient Education · COVID-19
Education resources
Coping with Stress
Patient Education · COVID-19