OneSCDvoice archive
Explore reporting, meetings, people, education, community stories and resources from the original OneSCDvoice website.
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460 pages from 2019
Videos and visuals
IU Nurse Invents Medical Device for People With Sickle Cell Disease
Videos · Caregiver · disease awareness/support · HealthCare Issues/Services · Nursing
Videos and visuals
Jordin Sparks on Her Personal Connection to Sickle Cell Disease
Videos
Community stories
Sending a Child With Sickle Cell Disease off to College
Patient Stories · QUALITY OF LIFE · Career · Daily Care/Activities/coping · Feelings and Experiences
Community stories
Sickle Cell and the Work Place
Patient Stories · QUALITY OF LIFE · Career · Feelings and Experiences
Videos and visuals
Sickle Cell Disease Can’t Stop Alliyah
QUALITY OF LIFE · Videos · Adolescent/Young Adult Transition · Coping · courage and inspiration · Relationships
Videos and visuals
With Cincinnati Children's Hospital - What is Sickle Cell Trait?
Videos · Family Planning · Sickle Cell Trait Status · Sickle Cell Trait/HbAS
Videos and visuals
World Sickle Cell Day: Sisters Living With Sickle Cell, Hoping for a Cure
QUALITY OF LIFE · Videos · Adolescent/Young Adult Transition · Coping · Family Support · Feelings and Experiences · Relationships
News and meetings
World Sickle Cell Awareness Day
Happenings
News and meetings
Men Living Well with Sickle Cell Guys Night Out
Happenings
Education resources
Assessing Disease Knowledge and Self-Management in Youth With Sickle Cell Disease Prior to Transition
Scientific Articles · Adolescent/Young Adult Transition · Daily Care/Activities/coping · Educational Support · Transition Program
Community stories
Darryl Watkins Stays Positive in Spite of Sickle Cell Disease
Patient Stories · QUALITY OF LIFE · Career · Coping · disease awareness/support · Feelings and Experiences · Sickle Cell Trait/HbAS
Education resources
Home Oxygen Therapy for Children: An Official American Thoracic Society Clinical Practice Guideline
Scientific Articles · Children · Hyperbaric oxygen therapy · Pediatrics/Child Care