OneSCDvoice archive

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3,376 pages

Videos and visualsAugust 31, 2017
TBoz on Living with Sickle Cell
QUALITY OF LIFE · Videos · Caregiver · Living with SCD/Quality of Life · Psychosocial · Relationships
Videos and visualsAugust 31, 2017
Using CRISPR Cas9 to cure sickle cell disease
Videos · CRISPR · Disease Management · Gene Editing · Investigational Gene Therapy · Investigational Therapy/Future Therapy
Community storiesAugust 30, 2017
CAMEROON: Let’s Talk about Sickle Cell Disease
Patient Stories · Coping · Living with SCD/Quality of Life
Community storiesAugust 30, 2017
Crux of the matter with Elsie: Sexual Disposition of Sickle Cell Warriors
Community Interviews · Lifestyle · Living with SCD/Quality of Life · Sexual Health
Community storiesAugust 30, 2017
Living With Sickle Cell: ‘I Don’t Know What It Means to Be Without Pain’
Patient Stories · QUALITY OF LIFE · Feelings and Experiences · Living with SCD/Quality of Life · Pain · Psychosocial · Racism
Community storiesAugust 30, 2017
Sickle Cell Disease isn’t Laughable, But It Has a Comedic Ambassador --- Kier “Junior” Spates
Patient Stories · Definitions · disease awareness/support · Disease Basics · Resources/Patient Support · Sickle Cell Disease/Sickle Cell Anemia
Community storiesAugust 30, 2017
The Bad Blood: My Life With Sickle Cell Anaemia
Patient Stories · Feelings and Experiences · Living with SCD/Quality of Life · Pain
Community storiesAugust 30, 2017
The Green Family Story
sickle cell · sickle · cell · Patient Stories · QUALITY OF LIFE · Living with SCD/Quality of Life · Newborn Screening · Reproductive Health
Community storiesAugust 30, 2017
Unheard Cries of Despair
Patient Stories · QUALITY OF LIFE · Feelings and Experiences · Isolation · Living with SCD/Quality of Life · Pain
Community storiesAugust 29, 2017
A Career Inspired by Disease
sickle cell · sickle · cell · Patient Stories · QUALITY OF LIFE · Feelings and Experiences · Living with SCD/Quality of Life
Community storiesAugust 29, 2017
Here to Stay — Living With Sickle Cell Disease
Patient Stories · QUALITY OF LIFE · Coping · Feelings and Experiences · Living with SCD/Quality of Life
Community storiesAugust 29, 2017
People With Sickle Cell Are Seen as Hypochondriacs or Drug Addicts. Even a Nine-Year-Old Has to Scream to Get the Care They Need
Patient Stories · QUALITY OF LIFE · Caregiver · Feelings and Experiences · Living with SCD/Quality of Life