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News and meetings archive

Explore reporting, meetings, people, education, community stories and resources from the original OneSCDvoice website.

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  1. News and meetings

    National Briefing with CDC: COVID-19 and the Chronic Disease Community

    Happenings

  2. News and meetings

    Community Gathering Guide: Hosting a Shine the Light Event

    Happenings

  3. News and meetings

    Patricia Frieson was more than the 1st COVID-19 death in Illinois. She was their sister.

    People

  4. News and meetings

    Sickle Cell Meetup on Facebook Live and Zoom – Sickle Cell 101

    Happenings

  5. News and meetings

    Sister of Illinois’ first coronavirus victim also dies from virus. Quarantine prevents family from mourning together.

    People

  6. News and meetings

    Shine the Light on Sickle Cell

    Happenings

  7. News and meetings

    Coronavirus/COVID-19 & Sickle Cell Disorder (Sickle Cell Foundation Nigeria)

    Spotlight

  8. News and meetings

    NORD Launches Financial Assistance Program for Rare Disease Community Members Impacted by COVID-19

    Spotlight

  9. News and meetings

    RDLA April 2020 Legislative Webinar – Rare Disease Legislative Advocates

    Happenings

  10. News and meetings

    COVID-19 Resources for Non-Profit Leaders and the Community | National Organization for Rare Disorders

    Spotlight

  11. News and meetings

    COVID-19 Health Alert for People With Sickle Cell Disease and Their Caregivers (Adapted for Sub-Saharan Africa)

    Spotlight

  12. News and meetings

    Sickle Cell Disease and COVID-19: An Outline to Decrease Burden and Minimize Morbidity (Adapted for Sub-Saharan Africa)

    Spotlight

News and meetings archive — page 24 | oneSCDvoice