OneSCDvoice archive
Explore reporting, meetings, people, education, community stories and resources from the original OneSCDvoice website.
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3,376 pages
People
Maria Grazia Roncarolo, MD
Healthcare Providers · Healthcare/Research · Hematology · Pediatrics/Child Care
Community stories
‘Every Time It’s A Battle’: In Excruciating Pain, Sickle Cell Patients Are Shunted Aside
Patient Stories · QUALITY OF LIFE · Emergency Departments/Hospitalizations · Feelings and Experiences · HealthCare Issues/Services · Healthcare/Research · Living with SCD/Quality of Life · mistrust · Psychosocial · Racism · Stigma
Community stories
Kyriako Damavoletes Talks About the Stigma of Sickle Cell Disease
Patient Stories · QUALITY OF LIFE · Discrimination · Feelings and Experiences · Living with SCD/Quality of Life · Stigma
Community stories
My Story: “Any Day Without Pain Is a Good Day!”
Patient Stories · QUALITY OF LIFE · Feelings and Experiences · Living with SCD/Quality of Life · Pain
News and meetings
National Sickle Cell Disease Poll of African Americans Dispels Long-Held Views
Clinical Trials and Research
Community stories
Pioneering a New Therapy for Sickle Cell Disease
TREATMENTS · Community Interviews · Clinical Trials · Disease Management · Investigational Therapy/Future Therapy
Videos and visuals
Sickle Options Video Library
video libraries · Definitions · Disease Basics · Sickle Cell Disease/Sickle Cell Anemia
Community stories
Sickle Strong Initiative – Dr. Marie Ojiambo
Patient Stories · disease awareness/support · patient advocacy · Resources/Patient Support
Education resources
Delayed hemolytic transfusion reaction in adult sickle-cell disease: presentations, outcomes, and treatments of 99 referral center episodes
Scientific Articles
Education resources
Does physical activity increase or decrease the risk of sickle cell disease complications?
Scientific Articles
Education resources
Factors predictive of leg-ulcer healing in sickle cell disease: a multicentre, prospective cohort study
Scientific Articles