OneSCDvoice archive
Explore reporting, meetings, people, education, community stories and resources from the original OneSCDvoice website.
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519 pages from 2018
News and meetings
Siklos (hydroxyurea) now available through ProCare Pharmacy Care's Siklos At Home program
Business
Videos and visuals
Sickle Cell Emergency Room Care: From Patients to Providers
Videos · Emergency Departments/Hospitalizations · Feelings and Experiences
Videos and visuals
Sickle Cell Stories: Office of Minority Health, U.S. Department of Health and Human Services
Videos · disease awareness/support · Sickle Cell Disease/Sickle Cell Anemia
News and meetings
ADDMEDICA receives FDA-approval for orphan drug Siklos®, first and sole hydroxyurea-based treatment for paediatric patients with sickle cell anaemia
Clinical Trials and Research
News and meetings
Endari reduces pain crises, hospitalizations in sickle cell patients, phase 3 trial shows
Clinical Trials and Research
Education resources
Sickle Cell Disease - Children’s Hospital of Philadelphia
Patient Education · Complications/Clinical Manifestations · Definitions · Recommendations/Precautions · Risk Factors
News and meetings
Town Hall Meeting: A policy discussion on the challenges facing the sickle cell community
Happenings
News and meetings
Annual National Sickle Cell Disease Association of America (SCDAA) Convention
Happenings
Education resources
Double-blind, randomized, multicenter phase 2 study of SC411 in children with sickle cell disease (SCOT trial)
Scientific Articles · Docosahexaenoic Acid