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Community stories archive

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118 pages in Community stories

  1. Community stories

    Living With Sickle Cell: ‘I Don’t Know What It Means to Be Without Pain’

    Patient Stories · QUALITY OF LIFE · Feelings and Experiences · Living with SCD/Quality of Life · Pain · Psychosocial · Racism

  2. Community stories

    Sickle Cell Disease isn’t Laughable, But It Has a Comedic Ambassador --- Kier “Junior” Spates​

    Patient Stories · Definitions · disease awareness/support · Disease Basics · Resources/Patient Support · Sickle Cell Disease/Sickle Cell Anemia

  3. Community stories

    The Bad Blood: My Life With Sickle Cell Anaemia

    Patient Stories · Feelings and Experiences · Living with SCD/Quality of Life · Pain

  4. Community stories

    The Green Family Story

    sickle cell · sickle · cell · Patient Stories · QUALITY OF LIFE · Living with SCD/Quality of Life · Newborn Screening · Reproductive Health

  5. Community stories

    Unheard Cries of Despair

    Patient Stories · QUALITY OF LIFE · Feelings and Experiences · Isolation · Living with SCD/Quality of Life · Pain

  6. Community stories

    A Career Inspired by Disease

    sickle cell · sickle · cell · Patient Stories · QUALITY OF LIFE · Feelings and Experiences · Living with SCD/Quality of Life

  7. Community stories

    Here to Stay — Living With Sickle Cell Disease

    Patient Stories · QUALITY OF LIFE · Coping · Feelings and Experiences · Living with SCD/Quality of Life

  8. Community stories

    People With Sickle Cell Are Seen as Hypochondriacs or Drug Addicts. Even a Nine-Year-Old Has to Scream to Get the Care They Need

    Patient Stories · QUALITY OF LIFE · Caregiver · Feelings and Experiences · Living with SCD/Quality of Life

  9. Community stories

    Family Celebrates 7-Year-Old's Sickle Cell Cure Thanks to Sister's Life-Saving Gift

    Patient Stories · Bone Marrow Transplant/Allogeneic hematopoietic stem cell transplantation · Disease Management · Nonpharmacologic Therapy · Stem Cell Therapy

  10. Community stories

    Your Genes Your Health

    Patient Stories · Living with SCD/Quality of Life · School

Community stories archive — page 10 | oneSCDvoice