Trusted Resources: Evidence & Education
Scientific literature and patient education texts
Steps to Better Health for People with Sickle Cell Disease Toolkit
source: Centers for Disease Control and Prevention (CDC) in partnership with the American Society of Hematology (ASH)
year: 2023
summary/abstract:In partnership with the American Society of Hematology (ASH), CDC has created health guidance materials for people with sickle cell disease (SCD) based on the ASH Clinical Practice Guidelines on Sickle Cell Disease. These materials include common complications of SCD and steps to take for better health.
Fact Sheets
- Caring for Common Complications of Sickle Cell Disease
- Steps to Better Heart Health
- What to Know About Blood Clots
- Steps to Better Lung Health
- Steps to Better Kidney Health
- 3 Tips for Safe Use of Medicines
- 5 Steps to Safer Blood Transfusions
- Managing Acute Pain if You Have Sickle Cell Disease
- Managing Chronic Pain if You Have Sickle Cell Disease
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.