Sickle Cell Disease news and research updates
Research readouts, treatment and access decisions, and community updates for people living with sickle cell disease and the people who care for them — each one dated, with a link to the original source where there is one.
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Experts worry over drug abuse among SCD patients
Aside from swelling, delayed growth and infections, one of the symptoms people living with Sickle-Cell Disease often struggle with is pain episodes, which can last from hours to…
Study links painful period to mental health issues among women with sickle cell disease
KINGSTON, Jamaica—Research has found a strong correlation between painful periods and high rates of depression, anxiety and suicidal thoughts among women living with sickle cell…
Study Links Painful Period to Mental Health Issues Among Women with Sickle Cell Disease
The Full Story Research has found a strong correlation between painful period and high rates of depression, anxiety and suicidal thoughts among women living with sickle cell…
What California’s Historic Sickle Cell Investment Means for Black Patients and Families
For many people in the sickle cell disease (SCD) community, the journey has been full of challenges. These challenges come not just from the disease, but also from a healthcare…
Virginia budget expands Medicaid access to sickle cell gene therapy
The funding is tied to a federal model designed to help Medicaid programs pay for expensive cell and gene therapies. It would help cover treatment for patients on Medicaid and…
How a CRISPR Gene Therapy Could Change Life for Young Children With Sickle Cell Disease
In a recent announcement, the U.S. Food and Drug Administration (FDA) approved the first gene therapy for children aged 2 years and older with sickle cell disease. This inherited…
Over 650 Suspected Sickle Cell Anemia Cases Found in Dang
Dang. More than six hundred and fifty suspected sickle cell anemia patients have been found when more than five thousand citizens were tested for sickle cell anemia and…
Hydroxyurea Monotherapy Insufficient to Treat Chronic Anemia in SCD
Hydroxyurea monotherapy is insufficient to treat chronic anemia in sickle cell disease (SCD) ; rather, a combination therapy approach is likely to yield more clinical benefits…
FDA Grants Priority Review to Agios’ Mitapivat sNDA for Sickle Cell Disease
The US Food and Drug Administration (FDA) has accepted Agios Pharmaceuticals, Inc.’s supplemental New Drug Application (sNDA) for mitapivat in sickle cell disease (SCD) and…
Uganda pushes for early sickle cell screening as new treatment hope emerges
Ugandans have been urged to know their sickle cell status and embrace early screening as the country strengthens efforts to combat sickle cell disease, one of the most common…
Pain, Stigma and Silence: The hidden survival gap in sickle cell anaemia
In developed countries, many people living with sickle cell disease routinely celebrate their 50th, 60th birthdays and beyond, enjoying good quality of life thanks to…
Mitapivat for Sickle Cell Disease Earns FDA Priority Review
The Food and Drug Administration (FDA) has accepted for Priority Review the supplemental New Drug Application (sNDA) for mitapivat in sickle cell disease (SCD). Mitapivat is an…