Sickle Cell Disease news and research updates
Research readouts, treatment and access decisions, and community updates for people living with sickle cell disease and the people who care for them — each one dated, with a link to the original source where there is one.
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‘Beloved’ Mom of 4 Dies After Contracting Salmonella Infection from Contaminated Ice on Overseas Trip
NEED TO KNOW Ayla Garcia, a 36-year-old mother of four from Virginia, has died after contracting a Salmonella infection on a mission trip to Kenya Her illness was complicated by…
India close to developing drug for sickle cell disease as Zydus-ICMR candidate enters phase III trials
India's efforts to develop an effective treatment for the neglected disease sickle cell anaemia have received a significant boost, with Zydus Lifesciences' drug candidate…
VAS-101 May Offer Promise in Patients With SCD
VAS-101, a topical curcumin gel applied under the tongue, is safe and well tolerated in patients with sickle cell disease (SCD), according to results from a phase 1 pilot study…
Virginia invests nearly $15 million to expand Medicaid access to sickle cell gene therapies
Gene therapy is offering new hope for people with sickle cell disease. Here's how Virginia's latest Medicaid funding could expand access to treatment. NORFOLK, Va. — 42-year-old…
Jharkhand Waives 75% Attendance Rule For Students With Sickle Cell Disease, Thalassaemia, Chronic Illnesses
In a significant step towards making school education more inclusive, the Jharkhand Cabinet on Tuesday approved a Standard Operating Procedure (SoP) exempting students suffering…
Agios scraps sickle cell treatment after trial shows limited benefit
July 21 (Reuters) - Agios Pharmaceuticals (AGIO.O) , opens new tab said on Tuesday it is discontinuing development of its sickle cell disease treatment after trial results failed…
Cause of death for Bexar County Jail inmate revealed as Sickle Cell Anemia
SAN ANTONIO - The official cause of death for a Bexar County Jail inmate who died in May has finally been released. According to the Bexar County Medical Examiner's Office, the…
Bexar County jail inmate died naturally of sickle cell disease, medical examiner rules
A woman who suffered a medical emergency in her cell at the Bexar County jail earlier this year died of complications from sickle cell disease, the Bexar County Medical Examiner's…
Ugandans Urged to Embrace Early Screening for Sickle Cell Disease
Health experts have urged Ugandans to undergo screening for sickle cell disease, warning that many people are living with the inherited condition undiagnosed, exposing them to…
Insurance claim rejected for ‘hiding’ teen’s sickle cell disease, family wins Rs 7 lakh relief
A 19-year-old’s death was followed by another blow for his family when India Post rejected his Rs 7 lakh Rural Postal Life Insurance (RPLI) claim, alleging that his sickle cell…
- Newssicklecellanemianews.com
Potential first-in-class treatment for SCD awarded FDA priority review
The U.S. Food and Drug Administration (FDA) has granted priority review — a decision that could speed a drug’s approval — to an application for the oral therapy mitapivat for…
FDA approves Nashville doctor's potential cure for sickle cell disease
Thirteen-year-old Rickey Buggs, III, recently celebrated being freed from a life-threatening blood disorder with a plate of Olive Garden spaghetti and birthday cake at a Nashville…