Sickle Cell Disease news and research updates
Research readouts, treatment and access decisions, and community updates for people living with sickle cell disease and the people who care for them — each one dated, with a link to the original source where there is one.
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Ischemic Stroke in Children With Sickle Cell Disease: A Report of Three Cases and a Review of the Literature
Ischemic Stroke in Children With Sickle Cell Disease discusses three cases and includes a review of literature related to sickle cell disease, an inherited hemoglobin disorder…
HHS Expands Sickle Cell Care Nationwide with Seven New Regional Hubs
HHS announced seven awards as part of its Sickle Cell Disease Regional Care Excellence (SoRCE) Program, aiming to expand sickle cell care nationwide. Read the original report from…
REDRESS Open Evening: Sharing Stories, Challenging Myths and Shaping the Future of Sickle Cell Care
This blog by Daryl Hagan highlights an open evening focused on sharing knowledge and experiences related to sickle cell research. Read the original report from King's College…
Wally Smith, M.D., Calls for More Resources for Treating Patients with Sickle Cell Disease
Wally Smith, M.D., emphasizes the need for increased awareness, education, and research funding to address the stalled progress in treating sickle cell disease. Read the original…
Sickle cell trait could throw off diabetes test, study finds
People with sickle cell trait — those who have one sickle cell gene but do not experience sickle cell disease — may need specific laboratory monitoring for blood sugar in order to…
Children’s Hospital Colorado Helps Shape National Standards for Neurodevelopmental and Neurocognitive Care in Sickle Cell Disease
Recommendations outline earlier screening and lifelong monitoring for development and cognition AURORA, Colo. , July 28, 2026 /PRNewswire/ -- Children’s Hospital Colorado…
Agios halts development of oral sickle cell drug following trial
Agios Pharmaceuticals is discontinuing development of its oral therapy candidate, tebapivat, for people with sickle cell disease (SCD). The decision follows results from a small…
Texas woman goes to a hospital for help with pain related to Sickle Cell Anemia, only to be told ‘seems like you’re trying to get high’
Many patients face significant barriers when seeking care for chronic conditions. This was recently highlighted by Dr Joel Bervell, who showcased a video involving a Texas woman…
Children's Colorado helps develop national standards for sickle cell care
Children's Hospital Colorado (Children's Colorado) supported the National Alliance of Sickle Cell Centers (NASCC) in developing new national standards to improve how clinicians…
Charmaine Royal Leads $5 Million Effort to Decode Sickle Cell Pain
Marie Claire Chelini, Trinity Communications What if one disease could unlock insights into dozens of diseases? This is the ambition underlying a new federal grant led by…
Internationally recognized expert leads University of Maryland School of Medicine program in sickle cell disease
Enrico M. Novelli, MD, MS , has been named Director of the University of Maryland School of Medicine (UMSOM) Program in Sickle Cell Disease and a Professor in the Department of…
Socioeconomic Disparities Associated With Higher SCD Mortality in Colombia
Between 2012 and 2023, sickle cell disease (SCD) mortality increased in Colombia and was significantly higher in socioeconomically disadvantaged regions, according to findings…