Sickle Cell Disease news and research updates
Research readouts, treatment and access decisions, and community updates for people living with sickle cell disease and the people who care for them — each one dated, with a link to the original source where there is one.
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Residents walking for a cause in the annual Sickle Cell Walk-A-Thon
Residents of Columbus, Ga. participated in the annual Sickle Cell Walk-A-Thon, walking to show support for individuals affected by sickle cell disease, despite cooler…
First In India: Odisha Frames Pregnancy Care Protocol For Sickle Cell Patients
Odisha has become the first state in India to implement a specific protocol for managing pregnant women with sickle cell disease. Read the original report from OdishaBytes .
Adekunle Gold, Pesa unveil $20,000 sickle cell support initiative
Singer Adekunle Gold has collaborated with Pesa to introduce a $20,000 initiative aimed at supporting organizations that work to enhance the lives of individuals affected by…
Thomas Jefferson University earns federal recognition for sickle cell care in Philadelphia
Thomas Jefferson University has received federal recognition for its sickle cell care in Philadelphia, as noted by a statement from the Department of Health and Human Services…
Adekunle Gold foundation, Pesa launch $20,000 sickle cell support initiative
The Adekunle Gold Foundation, in collaboration with Pesa, has initiated a $20,000 program aimed at supporting organizations focused on improving sickle cell awareness and care…
Phillip Mullin Becomes Louisiana’s First Child Functionally Cured of Sickle Cell Disease
Phillip Mullin, 15, is reported to be the first child in Louisiana to be functionally cured of sickle cell disease after undergoing gene therapy. Read the original report from The…
Alexandria teen becomes first child in state functionally cured of sickle cell disease
For the first time in Louisiana, a child with sickle cell disease has been functionally cured through gene therapy. Read the original report from FOX 8 Local First .
IIT Bombay Develops Portable, Low-Cost Device To Detect Anaemia, Sickle Cell Disease
IIT Bombay researchers have created a portable, low-cost device designed to screen for anaemia and sickle cell disease utilizing a drop of blood. Read the original report from…
One Drop Of Blood, Two Diseases: IIT Bombay Researchers Develop Low-Cost Screening Technology
IIT Bombay researchers have developed a low-cost screening technology, which was tested on 394 individuals in tribal areas of Maharashtra and central India to evaluate its…
Sickle Cell Disease and Alcohol: Is Drinking Safe?
The article discusses the effects of alcohol on individuals with sickle cell disease, covering risks, interactions with medications, and expert guidance on safe drinking…
Sight lost, hope gained: Sickle Cell Disease battle leads to new family, Greenville care
Gideon Inman recounts his experience with sickle cell disease, including losing his sight and ultimately finding hope, as he transitions from Uganda to Greenville. Read the…
Jefferson doctors look to expand access to high-quality care for sickle cell disease
Jefferson doctors aim to improve access to specialized care for sickle cell disease, affecting nearly 4000 individuals in Pennsylvania. Read the original report from WHYY .