Sickle Cell Disease news and research updates
Research readouts, treatment and access decisions, and community updates for people living with sickle cell disease and the people who care for them — each one dated, with a link to the original source where there is one.
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- Newscancernursingtoday.com
How Does Myeloablative HSCT Influence Pulmonary Outcomes in Pediatric Patients With Sickle Cell Disease?
Myeloablative hematopoietic stem cell transplantation (HSCT) “resulted in stable pulmonary function” among pediatric patients with sickle cell disease (SCD), according to findings…
- Newssouthfloridahospitalnews.com
MEDICATION AVAILABLE FOR ADULTS WITH SICKLE CELL DISEASE THROUGH CLINICAL TRIAL AT MEMORIAL
March 4, 2026 – Memorial Healthcare System is participating in a multi-center clinical research study evaluating an investigational medication for adults living with sickle cell…
- Newssicklecellanemianews.com
Blood test may improve kidney damage detection in children with SCD
A blood test measuring levels of the protein cystatin C may provide a more reliable way to monitor for kidney problems in children and young adults with sickle cell disease (SCD)…
Supporting those living with sickle cell
It’s debilitating, dangerous, and a disease that disproportionately affects people from Black and Caribbean backgrounds. Those living with sickle cell disease need more than the…
- Newsbbc.com
Emergency sickle cell help extended after campaign
A specialised sickle cell emergency service at the Royal London Hospital in Whitechapel will continue following a campaign, it has been announced. A trial run between September…
- Newscgtlive.com
Practical Considerations for Implementing SCD Gene Therapy Into Clinical Use
Sickle cell disease (SCD) gene therapy products, namely Vertex Pharmaceuticals' and CRISPR Therapeutics’ gene editing therapy exagamglogene autotemcel (exa-cel; marketed as…
- Newssicklecellanemianews.com
Asthma seven times more likely in SCD children than in unaffected siblings
Children with sickle cell disease (SCD) are about seven times more likely to have asthma than their unaffected siblings, with odds increasing with age, according to a study in the…
Transcript: Rare Diseases
MS. STEAD SELLERS: Hello, and welcome to Washington Post live. I’m Frances Stead Sellers, an associate editor here at The Post. Today I'm delighted to welcome Dr. Jay…
- Newsnature.com
Cost-effectiveness of gene therapy for sickle cell disease in Uganda: tailoring high-income evidence to Uganda’s context
Blood stem cell gene therapy to treat hemoglobinopathies is beginning to transform health for small numbers of patients in the U.S. and Europe, where these conditions qualify as…
Health Ministry affirms support for FoSCel Foundation in fight against sickle cell disease
The Ministry of Health has thrown its weight behind the Focus on Sickle Cell Foundation (FoSCel) in its efforts to raise awareness about sickle cell disease, a common inherited…
Breakthrough gene therapy for sickle cell disease remains out of reach in Africa
As Uganda rolls out mandatory nationwide screening of newborns for sickle cell disease this month, a gene therapy celebrated in the United States and Europe remains financially…
'Closing pilot sickle cell unit could be fatal'
Sickle cell patients at the Royal London Hospital will have to return to using A&E for emergency care after a five-month pilot ended Ending an emergency care pilot for sickle cell…