Sickle Cell Disease news and research updates
Research readouts, treatment and access decisions, and community updates for people living with sickle cell disease and the people who care for them — each one dated, with a link to the original source where there is one.
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Sickle cell disease heightens risk for precancerous blood disorder
These findings shed light on disruptions in normal blood cell development (hematopoiesis) that may be shared by sickle cell disease and clonal hematopoiesis. Children with sickle…
Georgia lawmakers pass Sickle Cell Disease Protection Act, expanding care for thousands statewide
A major step forward for sickle cell care in Georgia is now awaiting the governor's signature. On the final day of the 2026 legislative session, lawmakers passed House Bill 334 —…
Georgia passes a bill to ensure Medicaid covers sickle cell treatment, informed by real stories
A group of advocates, caregivers and people with sickle cell anemia walk into the Georgia Capitol to share their stories about sickle cell in March 2026.
A Cure at Any Cost? — The $3.1 Million Sickle Cell Breakthrough Stirs Hope and Outrage
On December 17, 2024, a quiet but seismic shift happened in a hospital on Long Island. A 21-year-old Black man named Sebastien Beauzile , who had spent most of his life shuttling…
Sickle cell disease has just been cured for the first time in New York
For 21 years, Sebastien Beauzile lived with a disease that shaped every part of his existence. Chronic pain, hospital stays, a body that could not be trusted, and a future that…
Agios to seek accelerated approval in US of oral mitapivat for SCD
Regulatory submission plans follow meeting with FDA on new trial data Agios Pharmaceuticals is planning to file an application with the U.S. Food and Drug Administration (FDA) in…
Gene Editing Therapy Succeeds in Severe Sickle Cell
New results from a clinical trial show promising outcomes for a gene-edited treatment for severe sickle cell disease , a genetic blood disorder with few curative options.
Services For Eliminating Sickle Cell Anaemia And Tuberculosis Should Be Prioritised, Says Madhya Pradesh Governor
Madhya Pradesh Governor Mangubhai Patel, on Tuesday, asserted that the efforts to eliminate Sickle Cell Anaemia and TB (tuberculosis) from the state should be given highest…
Gene-edited treatment shows promising outcomes for severe sickle cell disease
New results from a clinical trial show promising outcomes for a gene-edited treatment for severe sickle cell disease, a genetic blood disorder with few curative options. Conducted…
Causes and symptoms of Sickle Cell disease and Thalassemia: All about these two severe inherited blood disorders
A child who feels tired often, has repeated hospital visits, or unexplained pain may point to conditions like Sickle Cell Disease and Thalassemia. Discover the causes, symptoms…
California’s care for sickle cell patients finally works. We can’t abandon it now
As a teenager Rialton Reid was rushed to a Los Angeles emergency room in excruciating pain. Not only was he battling a sickle cell crisis; he was fighting a system unprepared to…
California’s care for sickle cell patients finally works. We can’t abandon it now
Mary E. Brown is president and CEO of the Sickle Cell Disease Foundation As a teenager Rialton Reid was rushed to a Los Angeles emergency room in excruciating pain. Not only was…