Sickle Cell Disease news and research updates
Research readouts, treatment and access decisions, and community updates for people living with sickle cell disease and the people who care for them — each one dated, with a link to the original source where there is one.
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Johns Hopkins physicians achieve 95% cure rate for sickle cell disease with bone marrow transplant
A reduced-intensity bone marrow transplant regimen developed by Johns Hopkins physicians provides durable engraftment with low rejection rates and also may preserve fertility…
New York study finds regional gaps in sickle cell disease hospitalizations
Sickle cell disease (SCD) hospitalization patterns vary across New York State, with New York City showing the largest share of hospitalizations and Long Island reporting the…
Sickle Cell Hospitalizations Are Getting More Severe—And Where Patients Live Matters
Data from a large New York State analysis found that sickle cell disease hospitalizations are becoming more severe over time, with significant regional disparities in outcomes…
Sickle cell disease care is unevenly distributed across regions in New York State
Sickle cell disease (SCD) is the most common inherited blood disorder in the United States. Approximately 10 percent of people with SCD in the US live in New York State, with the…
Experts call for urgent action on rising sickle cell burden in Nigeria, Africa
Health experts and medical researchers have urged swift and unified efforts to tackle the rising impact of sickle cell disease in Nigeria and throughout Sub-Saharan Africa. They…
Long Island has a ‘high burden’ for a potentially fatal blood disorder: new study
About 100,000 Americans have sickle cell disease (SCD), the most common inherited blood disorder in the US. Roughly 10% of patients reside in New York State, with the majority…
Study finds regional differences in sickle cell disease in New York state
Sickle cell disease (SCD) is the most common inherited blood disorder in the United States. Approximately 10% of people with SCD in the US live in New York State, with the…
Sickle Cell crisis: Stakeholders demand urgent policy action
Key stakeholders in Nigeria’s health and research sectors have raised fresh alarm over the deepening sickle cell crisis, calling for urgent, coordinated policy action to translate…
Health experts urge urgent action on sickle cell in Nigeria, Africa
Health professionals and researchers in the health sector have called for urgent, coordinated action to address the growing burden of sickle cell disease in Nigeria and across…
New study links sickle cell anemia to lower ovarian reserve in women
Women with sickle cell anemia (SCA), the most common and severe form of sickle cell disease (SCD), have significantly lower ovarian reserve relative to women without SCA and with…
Advanced gene editing ‘promising’ for sickle cell disease, but access challenges remain
Key takeaways: Two studies highlight the potential of gene editing for sickle cell disease treatment. Despite increasing evidence of efficacy, high costs and manufacturing…
Etavopivat Reduces VOCs and Boosts Hemoglobin in Sickle Cell Disease
Topline data were announced from a phase 3 trial evaluating etavopivat in adults and pediatric patients with sickle cell disease (SCD). Etavopivat is a once-daily, oral pyruvate…