OneSCDvoice archive
Explore reporting, meetings, people, education, community stories and resources from the original OneSCDvoice website.
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182 pages from 2022
Featured topics
Quality of Life
Living with SCD/Quality of Life
Featured topics
Treatments
Blood Transfusion · Crizanlizumab/SelG1 · Disease Management · Hydroxyurea/Hydria/Droxia · Investigational Therapy/Future Therapy · L-Glutamine/Endari · Nonpharmacologic Therapy · Pharmacotherapy/Drug Therapy · Voxelotor/GBT440
Videos and visuals
Raising Awareness Across Therapeutics: The Unquiet Mind Podcast YouTube Interview
Videos
Education resources
Rule The School
sickle cell disease · sickle cell · cell disease · sickle · cell · information · Patient Education
Videos and visuals
Sickle Cell Disease: Advancing the Conversation via Education, Awareness and Collaboration Episode 1
Videos
Videos and visuals
We Need To Talk: Sickle Cell - A Conversation w/ SimplySayo & Ronke on Living & Dealing w/Sickle Cell
Videos
News and meetings
11th Annual Sickle Cell Disease Therapeutics Conference
Happenings
Welcome! The Annual Sickle Cell Disease Therapeutics Conference is a forum to discuss the latest advancements and future trends for treating patients with sickle cell disease.
News and meetings
5th Annual Las Vegas Sickle Cell Walk
Happenings
Dreamsickle Kids Foundation 5th Annual Las Vegas Sickle Cell Walk, this event is the only fundraiser we have to raise money and awareness for patients in Nevada affected with…
Clinical trial links
clinical-trial-lnk 102922
Community stories
Honoring Global Warriors With Dr. Alex Kumar’s Untold Stories of SCD
sickle cell · sickle · cell · Patient Stories
These episodes feature voices from the global sickle cell community, speaking in their own words about issues that affect their lives. It’s the latest look at inspirational…
Places
Dreamsickle Kids Foundation
sickle cell · sickle · cell · Community Organizations
People
Georgene' Glass
sickle cell · rare disease · sickle · cell · support · Community Advocates